Your friends are fundraising. Don't miss out, opt in.

Clare Goddard

Clare Goddard is crowdfunding

0%
£2,541raised of £3,000 target by 79 supporters

Weʼre raising £3,000 to advance gene therapy for NF2

Richmond, Surrey
18 days to go

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Charity Launch Event for NF2 BioSolutions UK

Sunday 15th September 2019, I will be attempting to run Richmond Marathon to raise money and celebrate the launch of the UK charity arm of NF2 BioSolutions.

My name is Clare Goddard and my family have Neurofibromatosis Type 2 (NF2). NF2 is a rare genetic disorder that affects approximately 1/30,000 individuals globally. It results in the growth of multiple tumours throughout the central and peripheral nervous systems.

It's hard to tell that anything is wrong with my husband and two children, but inside tumours are growing; predominately in their brain and on their spine. Changes are happening.

Olivia‘s brain tumour resected 2015

NF2 BioSolutions is formed of patients, medical doctors, parents, friends and carers of someone affected with NF2 from all around the world. The not for profit boasts 44 global ambassadors representing 28 countries & states. Their purpose and passion is to cure NF2 via gene therapy. So far 3 top gene therapy labs have been selected who have started the preliminary toxicology tests. Conversations with NF2 specialists from all over the world show very positive signs that gene therapy can work to cure NF2.

With the organisation growing and to continue supporting their goal, NF2 BioSolutions UK has been launched to assist in this mission.

If you can donate, please help us to help ourselves in finding a cure for NF2.

NF2 BioSolutions UK charity does not fund any wages and all donations go directly to the gene therapy labs as agreed in our constitution.

Please watch this video from people in the UK and around the world who have NF2 and are working hard to find their cure.

I need a cure

NF2 BioSolutions Website

Thank you xxxxxxxxxx

Share this story

Updates

9

  • Clare Goddard3 days ago
    Clare Goddard

    Clare Goddard

    3 days ago

    Thank you for your amazing support! I did it :)

    Update from the Page owner

    Share this update to help us raise more

  • Clare Goddard6 days ago
    Clare Goddard

    Clare Goddard

    6 days ago

    Update from the Page owner

    Share this update to help us raise more

  • Clare Goddard7 days ago
    Clare Goddard

    Clare Goddard

    7 days ago

    Penultimate run today!

    Update from the Page owner

    Share this update to help us raise more

13 days ago

Clare Goddard started crowdfunding

Leave a message of support

Page last updated on: 9/17/2019 17.24

Supporters

79

  • Katie Cassin

    Katie Cassin

    Sep 17, 2019

    To Aunty Clare,So proud of you, love you sooooo much.From your darling niece.Katie xx

    £10.00

  • Timothy Hardesty

    Timothy Hardesty

    Sep 16, 2019

    Well done! What an amazing achievement xx

    £30.00

  • Friends of the Cassins

    Friends of the Cassins

    Sep 16, 2019

    Amazing work. Best of luck x

    £50.00

  • Liz Pemberton

    Liz Pemberton

    Sep 16, 2019

    You smashed the Marathon Clare! We knew you would. Really pleased for you as know how much it meant. Congratulations on your charity launch too. What a Star 🌟💪🎉💕 xxx

  • Pippin Hackett

    Pippin Hackett

    Sep 15, 2019

    Well done Clare...on the marathon and the charity launch!!!

    £20.00

  • Claire Glynn

    Claire Glynn

    Sep 15, 2019

    Well done Captain! 😁

  • Anonymous

    Anonymous

    Sep 15, 2019

    WOW... you are such an inspiration... on every level and now on the running front! Much love to our bestie Goddards xx

Clare Goddard

Become a supporter

Help Clare Goddard raise more

About the fundraiser
Clare Goddard

Clare Goddard

Richmond, Surrey

Mum and wife to three with Neurofibromatosis Type 2 and committed to advancing gene therapy for the condition to help ourselves and find a cure.

Report this Page
Donate