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Clare Goddard raised £2,861 from 82 supporters
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Closed 08/10/2020
Weʼve raised £2,861 to advance gene therapy for NF2 via NBS UK
- Funded on Thursday, 8th October 2020
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Story
Advancing gene therapy for NF2
My name is Clare Goddard and my family have Neurofibromatosis Type 2 (NF2). NF2 is a rare genetic disorder that affects approximately 1/30,000 individuals globally. It results in the growth of multiple tumours throughout the central and peripheral nervous systems.
It's hard to tell that anything is wrong with my husband and two children, but inside tumours are growing; predominately in their brain and on their spine. Changes are happening.
Olivia‘s brain tumour resected 2015
NF2 BioSolutions is formed of patients, medical doctors, parents, friends and carers of someone affected with NF2 from all around the world. The not for profit boasts 44 global ambassadors representing 28 countries & states. Their purpose and passion is to cure NF2 via gene therapy. So far 3 top gene therapy labs have been selected who have started the preliminary toxicology tests. Conversations with NF2 specialists from all over the world show very positive signs that gene therapy can work to cure NF2.
With the organisation growing and to continue supporting their goal, NF2 BioSolutions UK has been launched to assist in this mission.
If you can donate, please help us to help ourselves in finding a cure for NF2.
NF2 BioSolutions UK charity does not fund any wages and all donations go directly to the gene therapy labs as agreed in our constitution.
Please watch this video from people in the UK and around the world who have NF2 and are working hard to find their cure.
I need a cure
Thank you xxxxxxxxxx
Updates
10
- 5 years ago
Clare Goddard
5 years agoThis page is now the main fundraising page for NBS UK. Thank you for your support
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- 5 years ago
Clare Goddard
5 years agoThank you for your amazing support! I did it :)
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- 5 years ago
Clare Goddard
5 years agoShare this update to help us raise more
Clare Goddard started crowdfunding
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Supporters
82
Anonymous
Oct 24, 2019
Bobbie Paton
Oct 19, 2019
£20.00
Jean Freeman
Oct 13, 2019
Well done Clare
£20.00
Katie Cassin
Sep 17, 2019
To Aunty Clare,So proud of you, love you sooooo much.From your darling niece.Katie xx
£10.00
Timothy Hardesty
Sep 16, 2019
Well done! What an amazing achievement xx
£30.00
Friends of the Cassins
Sep 16, 2019
Amazing work. Best of luck x
£50.00
Liz Pemberton
Sep 16, 2019
You smashed the Marathon Clare! We knew you would. Really pleased for you as know how much it meant. Congratulations on your charity launch too. What a Star 🌟💪🎉💕 xxx
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About CrowdfundingAbout the fundraiser
Clare Goddard
Mum and wife to three with Neurofibromatosis Type 2 and committed to advancing gene therapy for the condition to help ourselves and find a cure.