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Emily Carkeet

Emily Carkeet is crowdfunding

0%
£2,365
raised of £5,000 target by 81 supporters

Weʼre raising £5,000 to pay for medication to treat our severely epileptic daughter

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Story

Clover, aged 4, was diagnosed with Aicardi Syndrome, and infantile spasms, when she was just 12 weeks old. In the early days after diagnosis, Clover’s seizures could only be controlled by industrial levels of steroids, which made her extremely poorly. After a brief spell of seizure freedom, Clover relapsed, and the situation worsened until she was having hundreds of seizures a week. Frontline pharmaceutical medications were not working, and the family were desperate.

Emily, and her husband Spencer, secured a legal private prescription for medical cannabis for Clover in August 2020. By November, her seizures had reduced by 95%. After adding another oil the following April, they fell dramatically, to just 1-2 seizures a week. They have since been able to wean her off of all her pharmaceutical medications, and she is treated effectively by medical cannabis alone. Since weaning pharmaceutical medications, Clover has started to communicate more effectively, and her development has improved significantly, despite doctors initially predicting that she would never walk or talk, and may not survive infancy.

Unfortunately, all this comes at a cost. Clover’s medication is currently not available on the NHS, and Clover’s parents have to pay £1300 every month, to access it privately.

As well as fighting and campaigning for NHS access for Clover, and many other children who are successfully using medical cannabis to treat intractable epilepsy, Emily and Spencer fundraise to pay for the medication that keeps their daughter safe and well.

Without this prescription, Clover's life would be at risk, and her family face the intense pressure of finding the money every single month. By donating to Clover, you will give her the opportunity to continue to live the wonderful life she is living, and help to keep her safe.

Thank you so much for all the support xxx

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Emily Carkeet

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    1 year ago

    Emily Carkeet started crowdfunding

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    Page last updated on: 2/20/2024 14.12

    Supporters

    81

    • Dianne

      Dianne

      Feb 20, 2024

      Good luck! So sorry it’s all such a battle! But your little girl is lucky with her loving parents😍

      £10.00

    • Kerry Munden Starr

      Kerry Munden Starr

      Feb 19, 2024

      Here's to raising your target and beyond for lovely Clover ❤️

      £10.00

    • Tina G-W

      Tina G-W

      Feb 19, 2024

      Hope you hit that target - and beyond!

      £50.00

    • K Gwilt

      K Gwilt

      Feb 18, 2024

      £20.00

    • Chrissy

      Chrissy

      Feb 18, 2024

    • Rachel Seviour

      Rachel Seviour

      Feb 1, 2024

      £5.00

    • Rachel Seviour

      Rachel Seviour

      Jan 1, 2024

      £5.00

    Emily Carkeet

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    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    About the fundraiser
    Emily Carkeet

    Emily Carkeet

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