Weʼre raising £5,000 to pay for medication to treat our severely epileptic daughter
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Clover, aged 4, was diagnosed with Aicardi Syndrome, and infantile spasms, when she was just 12 weeks old. In the early days after diagnosis, Clover’s seizures could only be controlled by industrial levels of steroids, which made her extremely poorly. After a brief spell of seizure freedom, Clover relapsed, and the situation worsened until she was having hundreds of seizures a week. Frontline pharmaceutical medications were not working, and the family were desperate.
Emily, and her husband Spencer, secured a legal private prescription for medical cannabis for Clover in August 2020. By November, her seizures had reduced by 95%. After adding another oil the following April, they fell dramatically, to just 1-2 seizures a week. They have since been able to wean her off of all her pharmaceutical medications, and she is treated effectively by medical cannabis alone. Since weaning pharmaceutical medications, Clover has started to communicate more effectively, and her development has improved significantly, despite doctors initially predicting that she would never walk or talk, and may not survive infancy.
Unfortunately, all this comes at a cost. Clover’s medication is currently not available on the NHS, and Clover’s parents have to pay £1300 every month, to access it privately.
As well as fighting and campaigning for NHS access for Clover, and many other children who are successfully using medical cannabis to treat intractable epilepsy, Emily and Spencer fundraise to pay for the medication that keeps their daughter safe and well.
Without this prescription, Clover's life would be at risk, and her family face the intense pressure of finding the money every single month. By donating to Clover, you will give her the opportunity to continue to live the wonderful life she is living, and help to keep her safe.
Thank you so much for all the support xxx
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Emily Carkeet started crowdfunding
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Feb 20, 2024
Good luck! So sorry it’s all such a battle! But your little girl is lucky with her loving parents😍
Kerry Munden Starr
Feb 19, 2024
Here's to raising your target and beyond for lovely Clover ❤️
Feb 19, 2024
Hope you hit that target - and beyond!
Feb 18, 2024
Feb 18, 2024
Feb 1, 2024
Jan 1, 2024
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