Weʼre raising £9,000 to Create an app for kids with Sickle Cell. The app will be a modern, interactive platform to track data and empower the child and parent.
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.
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Sickle Cell is one of the worlds most common genetic conditions yet it is vastly underfunded. Treatment options are limited.
Kids with Sickle Cell suffer with chronic pain. The pain is triggered by a combination of things including extreme heat or extreme cold. The Global pandemic means that we are now further isolated from our medical teams as we manage the symptoms at home.
We have no way to capture data to show the reality of living with sickle cell. We want to be able to log the number of pain crisis, severity of pain. pain location, pain frequency. Pain has a direct impact on a number of areas (mood, concentration at school, mental health) For the parents we want to provide the ability to log medications adminstered, water and hydration ( with gamification to encourage reaching the daily water targets) Diet and nutrition, supplements.
This data is crucial. Especially now living in a pandemic and isolated away from our medical teams. Data collection in healthcare allows health systems to create holistic views of our patients, personalise treatments, advance treatment methods, improve communication between doctors and patients, and enhance health outcomes.
Once we hit target, we will engage the services of expert apps to provide the following:
App development, Branding and app identity, Mentorship and guidance from senior members of Expert Apps, Privacy policies, terms and conditions, GDPR compliance, App submission to Apple & Google stores (IOS/Android), App Updates, All future core app upgrades , AWS very high performing server maintenance & running costs for 12 months, Support program, including unlimited access to Expert Apps Lab, Weekly Clinics and Quarterly ‘Appsterminds’ and a family feel community.Powerful communication methods. Which include push notifications, inbox messaging & email delivery, Training.
We are also looking to include consumer wearables to work alongside this.
Target Launch with Pilot Group : June 2021 ( if we can secure the funds)
We would love to be able to track the pain episodes and produce graphs that show the trends. This will help drive smarter solutions to pave the way for improved future treatments
Funmi Vanessa Ullam - Founder of Crescent Kids
Thank you for reading this far, we truly appreciate your support
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Jun 21, 2021
Jun 10, 2021
Your good works will bear beautiful fruit 🙏
Jun 8, 2021
Keep up the amazing work!
Jun 8, 2021
You’re such a light Funmi. Thank you for being you and the impact you are achieving xx
Jun 7, 2021
Thank you for everything you are doing!
Eliana and Jeff
May 16, 2021
Apr 21, 2021
Really hope and pray you reach and surpass this goal!
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About the fundraiser
Crescent Kids is a registered UK charity. We are working to support families looking after children with Sickle Cell during this global pandemic.