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c wheeler raised £2,460 from 99 supporters

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Closed 07/01/2017

49%
£2,460
raised of £5,000 target by 99 supporters

    Weʼve raised £2,460 to help fund Florence in her journey to receive treatment for GM1

    Funded on Saturday, 7th January 2017

    Don't have time to donate right now?

    Story

    So 3 weeks ago our best friends received the devastating news no parents or family want to hear, there little girl Florence was diagnosed with a rare genetic condition that so far has no cure, GM1. Its a regressive condition which means Florence will lose all her skills she now has resulting in losing her ability to walk, talk and swallow. The condition is life limiting, as you can imagine the family has been turned upside down, they have been given a little glimmer of hope though which is a trial hoping to take place next year in America through the GM1 foundation.
    So we want to raise £5000 to ensure that Florence and her family can travel to the USA and hopefully take part in this trial next year.

    Updates

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    c wheeler

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      5 years ago

      c wheeler started crowdfunding

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      Page last updated on: 1/5/2017 21.53

      Supporters

      99

      • Sarah S

        Sarah S

        Jan 5, 2017

        £20.00

      • Emily Cooke

        Emily Cooke

        Jan 5, 2017

        So sorry to hear this news about your family. Good luck with the fundraising x

        £20.00

      • Stephanie Burnett

        Stephanie Burnett

        Jan 5, 2017

        With love to you all and here's to a successful trial!

        £20.00

      • abby stubbs

        abby stubbs

        Dec 31, 2016

        Sent with much love from us The Stubbs family x

        £20.00

      • Alex White

        Alex White

        Dec 30, 2016

        With love from Alex, Kev, Jack & Grace xxxx

        £50.00

      • Sue & Gray Cole

        Sue & Gray Cole

        Dec 30, 2016

        Our thoughts are with you and your family Jenny love Sue & Gray Cole

        £25.00

      • Graham Webb

        Graham Webb

        Dec 29, 2016

        Not a lot hope it helps

        £20.00

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      c wheeler

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