Your friends are fundraising. Don't miss out, opt in.

Page closed

This page is now closed. Take a look at other inspiring pages on JustGiving

Closed 23/03/2019

0%
£0raised of £10,000 target by 0 supporters

    Weʼve raised £0 to Help to complete essential home renovations to support a better lifestyle for my daughter with rare genetical condition Myasthenia Gravis

    DY4 United Kingdom
    Closed on Saturday, 23rd March 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    My 9 year old daughter was diagnosed at 2 years old with a very rare strain of Myasthenia Gravis, a life limited genetic disorder. Due to deterioration of her condition and to prevent taking our daughter Chloe into respite care, we took the decision to redevelop our home with adaptations to give Chloe the most comfortable and practical environment to allow her to have as normal a lifestyle as possible, and to allow us, as parents, to enjoy our daughter whilst providing her with a calm and comfortable environment, and most importantly, allowing us to meet her care needs at home.

    Unfortunately, although paying £30k+ to building contractors in June 2018, the work has been left unfinished due to additional costs of approximately £10k which have been added as the work has developed, a cost which we unfortunately cannot finance at such short notice,

    Chloe is scheduled have a hip operation in January/February 2019. As a family we are preparing to support her recovery and to finish the works on the adaptations would not only support Chloe's recovery, but take an immense level of strain off us as a family to allow us to give Chloe the dedicated care and attention she not only needs but deserves.

    Thank you in advance for taking the time to view our page, any support will be received with appreciation beyond words,

    Thank you and love and support to all affected by this genetic condition, lets hope research will prevent the suffering of patients in the future.

    Chloe's parents

    Dale and Donna

    Updates

    0

    Dale Hadley

    Updates appear here

      9 months ago

      Dale Hadley started crowdfunding

      Leave a message of support

      Page last updated on: 11/23/2018 21.45

      Supporters

      0

        Great people make things happen

        Do you know anyone in need or maybe want to help a local community cause?

        Create you own page and donʼt let that cause go unfunded!

        About Crowdfunding
        About the fundraiser
        Dale Hadley

        Dale Hadley

        DY4 United Kingdom

        Report this Page