Weʼre raising £2,100 to Help fund essential equipment for Jude and to give back to the charities supporting us by running 10 x 10ks over 10 months..
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Our son Jude who is now 4 years old is an amazing character and without question the strongest person i know and i'm an exceptionally proud father. Jude was diagnosed at 5 weeks old with an extremely rare heart disease called infantile onset POMPE's disease essentially a condition that means Jude is missing a particular enzyme and as a result it causes muscle weakness which can vary in every case.
Jude has unimaginable strength and has a thirst for enjoying life to its fullest despite the hand he has been dealt. Jude loves everything a 4 year old does such as colouring, paw patrol, playing with his toys.
8 months ago Jude had a bout of pneumonia and parafluenza type 3 which meant he had to be put into a coma and as a result of this he then had to have a tracheostomy and be put onto long term ventilation. Jude has responded and adapted to his new accessories exceptionally well.
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- 19 days ago
Damien Houseman19 days ago
Having completed 6 x 10k so far I am planning the final 4 thankyou to all who donated to date in helping raise £908 half of which went towards Judes specialist car seat...
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Damien Houseman started crowdfunding