Your friends are fundraising. Don't miss out, opt in.

0

%

£58,696raised of £70,000 target by 597 supporters

Weʼre raising £70,000 to help her husband's fight against a rare aggressive cancer and see his children grow up.

Norwich, Norfolk, United Kingdom

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Damion is 38 years old and the most wonderful husband and father a wife could wish for. We have two beautiful girls together, aged 5 and 3 years, who adore their father. In August 2016, we were devastated to learn that Damion has an extremely rare pancreatic cancer called acinar cell carcinoma (of unknown primary). This extremely complex type of cancer is found in only 1-2% of patients with pancreatic cancer.

Although this type of cancer originated from the pancreas, the primary tumour has not been found, despite multiple scans, and it had spread to Damion's liver, ribs, pelvis and spine. To fight the aggressive nature of the cancer, in September 2016, Damion started a very intensive course of chemotherapy to control the disease. In November 2016, we were given the amazing news that the large tumour on the liver had shrunk by about 30% in response to the chemotherapy. In February 2017, Damion underwent surgery to remove half of his liver along with the large tumour, two smaller tumours and his gall bladder. The next scan showed no sign of disease anywhere within the abdominal areas and also that the bone areas were dormant.

Unfortunately, our world collapsed again after the latest scan results in September 2017. The bone areas are active again, and new tumours have also appeared in the spinal and rib areas and a suspect 1cm lesion was found on the liver. Damion is about to complete six more cycles of chemotherapy to get the disease under control. This type of chemotherapy, however, cannot be sustained in the long-term as it severely weakens the immune system, can cause other serious health problems, and increases the risk different cancers appearing due to the toxicity of the treatment. After this cycle of treatment is complete, the only option for Damion if he stays with the NHS is palliative care involving chemotherapy and radiation treatment. This will not address the underlying issues and the prognosis for this approach is very poor. Furthermore, the continued reliance on chemotherapy and radiation will not only increase the risk of other serious health problems but will also destroy the quality of Damion’s remaining life. .

To give Damion the best chance of a longer life in better health, he has been exploring other treatments and therapies offered at reputable clinics abroad. All of the clinics offer the latest cutting-edge treatments, which include immunotherapies, stem cell therapy, cryo-therapy, targeted chemotherapy, non-evasive radiation, regional and whole body hyperthermia, proton therapy and many others. Certain treatments available to Damion will depend on the outcome of genetic testing of his tumour tissue and on the funding raised. The cost of Damion's initial treatment is detailed below. We are aiming to raise around £52,000 in the first instance to cover the cost of genetically appropriate testing and the first cycle of treatment, which includes a 9 month after-care home treatment plan. Additional costs that could be incurred include bone scans, ultrasounds, surgeries, blood transfusions, x-rays and lab work.

Various fundraising events will be held throughout the year to help meet the target. I myself along with some of our friends will be running the Norwich half marathon and competing in various other events. Music events are also being planned with dj's and friends collaborating.

We see this as the best opportunity for Damion to live a longer life in better health and see his children grow up, and are extremely grateful for the ongoing support of friends and family and any donations kindly pledged to help. We are also extremely thankful for anyone else who is able to make any contribution, of any size, to help us undertake this vital treatment to prolong our wonderful husband and loving father's life

Thank you for reading,

Emily, Arabella and Olive

xxx

Genetic Testing £20,000

First cycle of treatment £32,000

Second Cycle of treatment - £10,000

Hallwang Clinic

http://www.hallwang-clinic.com/your-oncological-journey-cancer-treatment/advanced-treatment-concepts.html

Sanoviv Medical Institute

http://www.sanoviv.com/medical-programs/cancer-treatment-program

Oasis of Hope

http://www.oasisofhope.com/cancer-therapies

Share this story

Updates

195

  • Emily Burbank3 months ago
    Emily Burbank

    Emily Burbank

    3 months ago

    So this week is a huge week as on Friday I will be heading to Sanoviv Medical Institute in Mexico. I am very excited & the same time a little apprehensive as I will be leaving my girls behind & it's all a bit unknown until testing & diagnostics are completed. From the bottom of my heart I want to thank all of you for your support, I wouldn't have this opportunity without your help. I will post a few updates while I am away but contact with the outside world is limited. I return to the UK 18 June. Damion xxxxx

    Share this update to help us raise more

  • Emily Burbank3 months ago
    Emily Burbank

    Emily Burbank

    3 months ago

    EXCITING NEWS... As we have reached 77% and time is of the essence, I have booked the first course of treatment at Sanoviv Medical Institute in Mexico!!! I fly out 25th May I will be returning to the UK 17th June. I will be sad to leave my girls (Emily, Arabella & Olive) but I'm pleased my Mum will be joining me. We are continuing to fund raise to cover the next stage of treatment. This trip has given my family and I hope, strength and positivity. For that we are eternally grateful. Mexico here I come!!!

    Share this update to help us raise more

  • Emily Burbank4 months ago
    Emily Burbank

    Emily Burbank

    4 months ago
    Update from the Page owner

    Share this update to help us raise more

7 months ago

Emily Burbank started crowdfunding

Leave a message of support

Page last updated on: 6/25/2018 8:57 PM

Supporters

597

  • Rob Taylor

    Rob Taylor

    Jun 25, 2018

    Good luck !!

    £2.00

  • Julian Garnett

    Julian Garnett

    Jun 24, 2018

    Really sorry for the late donation Damo and Emily! Love you guys xx

    £50.00

  • Michael Daynes

    Michael Daynes

    Jun 23, 2018

    Good luck Damion, Emily and FamilyI wish you all the luck and good fortune in the world

    £10.00

  • Brian Jacob

    Brian Jacob

    Jun 4, 2018

    Sending with support and best wishes from a podcasting friend of Jack's based in the US.

    £20.00

  • Anonymous

    Anonymous

    May 29, 2018

  • Paul Stewart Stewie_sas

    Paul Stewart Stewie_sas

    May 29, 2018

    Good luck with the treatment stay strong and keeep believing. Stewie_sas COYS

    £10.00

  • Miles Fish

    Miles Fish

    May 26, 2018

    All the best, hope the trip goes well 👍

    £10.00

Emily Burbank

Become a supporter

Help Emily Burbank raise more

About the fundraiser
Emily Burbank

Emily Burbank

Norwich, Norfolk, United Kingdom

Report this Page

* JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.

Donate