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Dana Sharon Prince raised £500 from 6 supporters

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Closed 15/12/2018

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£500raised of £500 target by 6 supporters

    Weʼve raised £500 to Send my son to London for treatment and tests to help improve his life.

    Funded on Saturday, 15th December 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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    Story

    Connor is now 13 and has lived with an extremely rare genetic conditional called Kleine Levin Syndrome since he was 8 years old. KLS only affects around 1000 people worldwide and there are only a hand-full of children in the UK diagnosed with this condition. Connor can sleep for weeks and even months when in episodes and in between episodes has memory loss and severe confusion. It is suspected that he also has Delayed Sleep Phase Disorder keeping him from sleeping through the nights when out of episodes and forcing him to sleep during the day. He is unable to keep up with school work and missing out on seeing his friends and going out with friends. We have been referred to a Specialist in London and although we have been once for a consultation, we are required to go back for further tests which could lead to medication to help Connor lead more of a normal life. KLS is incurable and very little is known about it. The DSPD is easier to treat but must be confirmed first with more tests. Connor has missed out on many Christmas Days, Birthdays, School trips, family holidays and other special occasions because of this condition and has little memory of growing up due to his long episodes and odd sleeping patterns. We desperately want to provide him with a better quality of life moving forward and to help him back to school to improve his chances of an education and to learn with his peers. Connor is a funny and bright teenager with a great sense of humour, who deals with this condition in a very grown up and mature way but get depressed and upset about losing large portions of his life. Please help us fund this vital trip to London and show him that there can be a life outside of his bedroom.

    Updates

    3

    • Dana Sharon Prince10 months ago
      Dana Sharon Prince

      Dana Sharon Prince

      10 months ago

      Thanks to everybody who supported us, this last vital trip helped the Specialists to look at medication with the test results in mind and Connor has now after 8 years of waiting, he has now started his new Medication and we are hoping this will help him get to school and socialise more. We are so grateful for your help and good will.. Dana

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    • Dana Sharon Prince1 year ago
      Dana Sharon Prince

      Dana Sharon Prince

      1 year ago

      We have been offered the vital tests this year, please keep sharing, the sooner we can get these tests done the sooner we may be looking at a brighter future.

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    • Dana Sharon Prince1 year ago
      Dana Sharon Prince

      Dana Sharon Prince

      1 year ago

      Please continue to share and read his story, the trip and the tests will be life changing for Connor.

      Share this update to help us raise more

    1 year ago

    Dana Sharon Prince started crowdfunding

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    Page last updated on: 12/17/2018 18.19

    Supporters

    6

    • Jonathan Pitchfork

      Jonathan Pitchfork

      Sep 20, 2018

      £430.00

    • Elaine Grace

      Elaine Grace

      Sep 18, 2018

      Hope you manage to reach your target and finally get Connor the help he needs. Love Elaine x

      £10.00

    • Jonathan Pitchfork

      Jonathan Pitchfork

      Aug 22, 2018

      Best wishes, I hope they can find ways to help create some more regular paterns for him.

      £20.00

    • Anonymous

      Anonymous

      Aug 21, 2018

      Good luck ❤️

    • Gemma

      Gemma

      Aug 21, 2018

      Good luck!

      £20.00

    • Nigel Allen

      Nigel Allen

      Aug 19, 2018

      Best wishes x

      £10.00

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    Dana Sharon Prince

    Dana Sharon Prince

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