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Daniel Macedo raised £900 from 42 supporters

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Closed 12/10/2018

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£900raised of £1,000 target by 42 supporters

    Weʼve raised £900 to help Shay's Family with expenses whilst this brave little boy undergoes brain surgery

    Funded on Friday, 12th October 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    A very good friend of mine has a story which, as a parent, I cannot even begin to comprehend.

    At 18 months old, Their little boy, Shay, was diagnosed with epilepsy when he began having seizures. An MRI detected that his brain was misshapen and that there was a light where the seizure activity was present. They later went on to discover that that light patch was in fact a tumour which had been present from the womb and his brain had formed around it.

    After a few tough weeks in hospital with Shay having clusters of seizures, and at one point in status epilepticus and drugged to the absolute max, Shay was transferred from QA hospital to Southampton General for specialist care. Finally he began responding to meds and was able to go home.

    A subsequent visit to hospital for video telemetry showed that, although not always visually apparent, his brain was showing signs of almost constant seizure activity.

    Now 5 years old and highly medicated on anti epileptic drugs, after numerous hospital visits and changes to meds, the doctors have decided that the best course of action now is to operate to remove the tumour. The medication, coupled with the condition make shay very tired, alter his mood and limit his abilities. He suffers from regular bad head aches and needs a lot of suopervision.

    The date has now been set for Shay to have Transsylvial Selective Amygdalohippacampectomy (a procedure where his left temporal lobe will be removed along with the tumour.

    As you can probably imagine this is a very difficult time for Shay and his parents. No one is sure how long the recovery will take or what parts of Shay's life will be affected.

    I'd like to raise a bit of money to help this family cover some expenses associated with this ordeal so that they have one less worry occupying their minds.

    In the short term there will hotel and travel etc lost earning etc. In the long term no one knows but anything we can do to help take some pressure will be greatly appreciated.

    Updates

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    Daniel Macedo

    Updates appear here

      6 months ago

      Daniel Macedo started crowdfunding

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      Page last updated on: 7/17/2018 5:55 PM

      Supporters

      42

      • Sue & Peter Wall

        Sue & Peter Wall

        Jul 17, 2018

        Wishing shay a fast recovery and hoping the future is full of nothing but good times 💞 love to all the family 💞

        £25.00

      • Anonymous

        Anonymous

        Jul 17, 2018

        £30.00

      • Rachel Berryman

        Rachel Berryman

        Jul 16, 2018

        Wishing you a speedy recovery x x

      • Tracy Elders

        Tracy Elders

        Jul 15, 2018

        Hope all goes well for Shay and his family xx

        £20.00

      • Chris Hilton

        Chris Hilton

        Jul 15, 2018

        WTTR FAM

        £30.00

      • Gavin Low

        Gavin Low

        Jul 15, 2018

        £10.00

      • Kerry Jo-Ann Loughrey

        Kerry Jo-Ann Loughrey

        Jul 15, 2018

        £10.00

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      Daniel Macedo

      Daniel Macedo

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