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Daniella ingrosso raised £1,170 from 38 supporters

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Closed 11/06/2017

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£1,170raised of £20,000 target by 38 supporters

    Weʼve raised £1,170 to Rudi's continued treatment in Paris and to provide him with equipment to enhance his life

    Funded on Sunday, 11th June 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Our beautiful son Rudi is now 18 months old....he has a rare complex and life limiting genetic condition.
    Spinal Muscular Atrophy is devastatingly cruel,and effects the muscles we all rely on to move and most importantly to breathe and swallow.
    Rudi's diagnosis came after we became increasingly concerned with his lack of movement and his inability to reach key milestones such as sitting and maintaining head control.
    At 6 months old our peadiatrician confirmed Rudi had SMA Type 1 which is considered the most severe type.he handed us an information leaflet stating life expectancy was on average just 2 years.
    Our strength to keep fighting and carrying on comes from Rudi.
    We refuse to accept that we may lose him and we focus every second on making him smile and never giving up on him!
    In February of this year we took our boy all the way to a hospital in Paris to start the first ever treatment available for SMA.
    A lumber puncture injection used to administer the drug Nusinersen is given fortnightly during the loading stage of the treatment,and then 4 monthly for the rest of Rudi's life.
    The drug is not a cure but it will hopefully increase Rudi's strength and most importantly improve his respiratory function.
    Myself and the tight nit SMA community are doing all we can to make this treatment widely available to all babies children and adults with this debilitating condition.putting pressure on the NHS to provide an opportunity of much needed hope and help.
    Myself and John would like to thank everyone who continues to show us much needed support,and thank all who have previously donated to Rudi's fund.individual donations and events organised by family and friends have lightened our load.
    We are regularly getting asked to provide another fundraising page for future planned events.
    All money will be used towards our regular travel expenses and hospital fees...
    We are always looking at ways to improve Rudi's quality of life with equipment,toys etc.
    THANKYOU💙

    Updates

    1

    Daniella  ingrosso

    Updates appear here

    • Daniella  ingrosso2 years ago
      Daniella  ingrosso

      Daniella ingrosso

      2 years ago
      Update from the Page owner

      THANKYOU for all the support and donations to Rudis fund....you helped to raise money to cover the cost of his final treatment in Paris in august.....hopefully then we can get him treatment a bit closer to home! 💙

      Share this update to help us raise more

    2 years ago

    Daniella ingrosso started crowdfunding

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    Page last updated on: 6/8/2017 17.37

    Supporters

    38

    • Karen French

      Karen French

      Jun 8, 2017

      Well done to Jennie and team on their run. Here's a little something for Rudi's cause xxxx

      £10.00

    • Zoe Snape

      Zoe Snape

      Jun 3, 2017

      Lots of love to you all. Zx

      £50.00

    • Jodie Keyworth

      Jodie Keyworth

      May 29, 2017

      Well done guys!! Xxx

      £20.00

    • luke beaumont

      luke beaumont

      May 29, 2017

      Well done on the run guys amazing effort!

      £50.00

    • Geniene Radford

      Geniene Radford

      May 29, 2017

      £20.00

    • Joanne Emsen

      Joanne Emsen

      May 29, 2017

      £10.00

    • Anne Marie Else

      Anne Marie Else

      May 29, 2017

      £50.00

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    About Crowdfunding
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    Daniella  ingrosso

    Daniella ingrosso

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