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£120raised of £500 target by 13 supporters

Weʼre raising £500 to help fund research into SanFilippo syndrome: a condition that one of our students has. we would like to help those looking for a cure.

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Story

Danielle and Kelly would like to raise funds to put towards a charity that is looking to speed development into treatments for Sanfilippo syndrome. We both work closely with an inspirational young lady who was diagnosed with SFS at a young age but is coping with the everyday challenges this brings! Sanfilippo syndrome is a rare autosomal recessive lysosomal storage disease. It is caused by a deficiency in one of the enzymes needed to break down the glycosaminoglycan (GAG) heparan sulfate (which is found in the extra-cellular matrix and on cell surface glycoproteins). Affected children generally do not show any signs or symptoms at birth. In early childhood, they begin to develop developmental disability and loss of previously learned skills. In later stages of the disorder, they may develop seizures and movement disorders. Patients with Sanfilippo syndrome usually live into adolescence or early adulthood.

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Danielle Fox

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    20 days ago

    Danielle Fox started crowdfunding

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    Page last updated on: 2/10/2019 13.04

    Supporters

    13

    • Julie Rutt

      Julie Rutt

      Feb 10, 2019

      £10.00

    • Kathryn Gildea-Smith

      Kathryn Gildea-Smith

      Feb 8, 2019

    • Anonymous

      Anonymous

      Feb 7, 2019

      Good luck ladies. Full support from someone else who works with that young lady.

      £10.00

    • Amy Graham

      Amy Graham

      Feb 6, 2019

      Best of luck guys!!!

      £10.00

    • Emma Tolley

      Emma Tolley

      Feb 5, 2019

      Good luck to both of you

    • Anonymous

      Anonymous

      Feb 4, 2019

      Good Luck to you both

      £10.00

    • Anonymous

      Anonymous

      Feb 3, 2019

      Well done, good luck x

      £5.00

    Danielle Fox

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    Danielle Fox

    Danielle Fox

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