Hello,

I'm Danny, 33 Year old Male, Electrican, 3 Beautiful girls (2, 3, and 5 years old), whos life before Christmas seemed almost normal.

I am one, starting this fundraising page to help me cover the fincial burden of my house, and expenses to and from hospital, but two and most importantly to raise awareness of Ewing Sarcoma.

Back in September 2024, i started to get pain and slight swelling in my calf area on my lower right leg. It would come for a few days at a time, then go for a week or so.

Eventually this increased and in October i contacted my GP, and attend 111 out of hours, as the pain had increase and the days of pain and swelling were increasing. The out of hours GP checked my leg and said it was probably a strain due to my work, they said if it hadnt improved over the next 4 weeks to contact my GP again.

Towards the end of November, i had another 'flare up', and again it increased in length. I contacted my GP, however no apppointments were avalible, so i contacted 111. I attended another 111 out of hours GP appointment, who was concerned and tried to book me an MRI. Unfortnately the system wouldnt allow her to book so she then tried to refer me to a Bone Surgeon to book the MRI.Towards the end of December i finally recieved a phonecall, but this was from my GP to say the referral wasnt able to be done, and i had to attend the surgery to see the GP.

I requested a telephone appointment, as i was due to fly to ireland for my Paps Funeral on the day they had an appointment avalible. They told me they'd booked this in yet i never received any calls.

Now, i'm in Ireland attending a funeral, so decided to deal with the issues on my arrival back to England.

Once i arrived back in England for the following week i was bed bound with the flu, and missed christmas eve, christmas day, boxing day and the days to follow with my Children, believing staying away was whats best for them so they didnt catch the Flu.

Once i felt well enough i immediately contacted the GP for an appointment, as again my leg had flared up and i was in agony. The GP saw me and referred me for a blood clot check, and put me on blood thinners whilst i was awaiting the check. I was told this would have been undertaken within approximately 3 days, however after 4 days, still no scan. So i took the inciative to call them to chase up the scan, to be told the referral hadnt been submitted yet.

A few hours after the referral was actually submitted i was contacted by my local DVT Clinic for an ultrasound check.

Following the ultrasound check, they confirmed i didn't have a blood clot, and felt like i was back to square one. I was told to immediately stop taking the blood thinners. Within 24 hours my leg had swallon to the biggest it had been since this whole sitation started, and i had had enough.

It was my youngests second birthday (12th January 2025), and i was in bed in tears due to the pain. So i started researching other ways to get an MRI scan, and i found a clinic within 30 minutes from my house, which you could self refer, pay, and have this type of scan done.

So at 2am in the morning, i decided enough was enough, and i booked the scan for later on that day.

3pm that day i was sat in the waiting room filling out forms ready for my scan at 3.40pm. The staff at the clinic were lovely, they were very supportive, and took me straight into the scan room at my allocated time.

Once the scan had been completed they said i would get my results within a few days, as they needed to be reviewed by a consultant.

Over them few days my mind kept repeating what i potentially thought could be wrong: Blood clot, Muscle damage, Ligamont Damage, maybe worse case Arthuritus.

Thursday late morning, i at work as my flare up had dulled down, but i was able to work. My phone binged with an email, i opened the email and straight away saw the word 'Influtrive MASS, Right Leg, 9cm x 6cm x 4.5cm' ..... 'SARCOMA'.

My heart stopped and my world just fell apart, i don't have life insurance, or a pension, my 3 girls, who would help support their mum, was i going to die? Did i miss my last christmas with them as i had the flu? All these things flying round my head.

I packed up my kit and headed home.

I contacted the clinic and was told to send the scan and scan report to my GP, and await there response. Within a day the GP had booked me an in face to face appointment where we spoke about what had happened so far, and the GP submitted my referral to my local hospitals Bone specialist... where i was probably supposed to be referred 2 months prior by the out of hours GP.

Within 4 days i was contacted by my local hospital and booked in for a face to face appointment the following week with a consultant. By this point i could no longer weightbare on my leg, therefore am now reliant on crutches and/or a wheelchair.

I attended that appointment and had an xray and bloods immeditately and spoke to the consultant who said they could not deal with sarcomas, and i had to be referred to Stanmore Orthopedic Hospital for further investigations and they would take over my care.

Within another week Stanmore had contacted me for a full body MRI, and a biopsy the following week.

A very slow 2 weeks (the biopsy had to 'grow' for 2 weeks), they confirmed it was a sarcoma. She said i would be attending UCLH for my Chemo and further treatment, and Stanmore would be doing any surgeries, if needed.

A day later i then received a call from them saying they were referring my to Oxford Churhill Hospital and NOC to take over all my care, as this was closer to my home.

A few days after that Oxford contacted me and from then on it was full on.

MRI scan, PET CT, Surgeon meeting, Oncologist meeting, ECG, X-ray, another 2 biopsies, Physio.

Fast forwards to Monday 10th March, i was booked in as in inpatient to have a PICC line fitted ready to start my first found of Chemotherapy on Tuesday morning.

My treatment plan of action contains 14 rounds of VDC/IE chemo which is approximately 7 months, the last 2 months of chemo i will also have radiation therapy then surgery.

The surgery will be proformed by a limb salvation specialist, who will try to save my leg. The smaller back bone of my leg will be removed as the tumour is in that and in the soft tissue around that bone. He said limb amputation is rare but can still happen, and if it happens it will be an above knee amputation. He said theres 2 main blood supplies into my foot and they just need to keep one, but i will have a long term foot drop. He said surgery will not save my life, the chemo will, and without it id be looking at 12 months.

I am asking for donations as anyone who knows me knows i have 3 beautiful young girls, their mum, and a house to support. My mortage alone is £1100 a month, and thats without any other bills.

I understand times are tough for everyone fincially, and im grateful if you've gotton to the end of this very long winded description, but i really want to raise awareness. Trust your gutt! That £350 private scan quite literally saved my life, as i could of still been waiting for an MRI referal from my GP if i hadn't taken it apon myself to get it done privately. In the back of my mind i knew something wasn't right, however until i researched i didn't know you could self refer to these places.

With this type of Cancer, if it spreads one of the first place it spreads to is your Lungs, and then its not good news from there.

So, Hello, My name is Danny and i have Ewing Sarcoma Cancer.

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