We are raising funds towards a specialised bathroom and changing facillity for jack oldacres.
Jack is 9 years old and suffers from a rare threatening skin condition called nethetons syndrome. Jack is one of only 16 sufferers in britain.
Jacks skin grows and peels of twice a day making him very sore and itchy, jack can not regulate his body tempreture and has numerous allergies.
Jack has 2 baths a day lasting up to 1.30 hours a time where he is coverd in cream and has to soak in the bath before having his skin physically peeled of and exfoliated. This process is very painfull for him and also can be quite traumatic not only for jack but his parents too.
This specialised bath and bathroom will be life changing and reduce jacks bathing time by 2 hours per day as the bath will do the exfoliating for him .
Also the room will be tempreture controlled to aid his body tempreture issues.
Jack has never been able to eat beeakfast downstairs as he does not have time and eats in the bath, this time he will get back will mean he can have propper breakfast before school.
Jack has to be creamed all over his body every 3-4hours to stop his skin cracking and causing infection.
Thank you for your support
For more info www.nethertonsyndrome.com