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£1,630raised of £1,000 target by 5 supporters

Weʼre raising £1,000 to help towards specialist equipment

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Just after Jacksons first birthday in August 2015 he was diagnosed with early infantile Krabbes disease. Jackson, like other babies with Krabbes was born apparently healthy and hit all the normal milestones that you expect in the first 6 months of life with no sign that anything was wrong. It was shortly after this time that the condition started to take hold, and he began to gradually lose key skills. Krabbes is classed as a rare disease effecting 1 in 100,000, it is often misdiagnosed. Unfortunately there is no cure for Krabbes and there is no medical intervention that can prolong Jacksons life. Most babies with this condition become angels some time around their second birthday. Before this time, Jacksons muscles will continue to weaken, affecting his ability to move, chew, swallow, and breathe. There is also a possibility that he will experience vision loss and seizures.

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Darren Garwood

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    2 months ago

    Darren Garwood started crowdfunding

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    Page last updated on: 8/15/2018 7:00 PM



    • Heidi Langton

      Heidi Langton

      Aug 15, 2018

      With love from the Ivy Torremolinos Spain ❤️ X


    • ECL ECL Civil Engineering Ltd

      ECL ECL Civil Engineering Ltd

      Jun 28, 2018


    • Anonymous


      Jun 25, 2018

      from us all at Bushcade


    • Toppesfield Ltd

      Toppesfield Ltd

      Jun 14, 2018

      From us all here at Toppesfield


    • Luke Keating

      Luke Keating

      Jun 12, 2018

      On behalf of Breheny and Tiboc


    Darren Garwood

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    Darren Garwood

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