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Darren Kerr raised £6,235 from 207 supporters

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Closed 15/05/2017

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£6,235raised of £4,999 target by 207 supporters

    Weʼve raised £6,235 to Help Aryana get the treatment she needs to have a normal childhood

    Funded on Monday, 15th May 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Aryana was born in August 2014 at 33 weeks gestation. At birth she needed help breathing and feeding and was in the Neonatal Intensive Care for almost 2 weeks. Since then she has been in and out of hospital and is in pain daily.

    Aryana has been on a special medical grade formula since she was 5 weeks old. This sustains her and basically keeps her alive. As Aryana started to try solid foods it became apparent that she just couldn't tolerate them. She would scream in agony for hours and vomit until she passed out and needed rushed to the hospital.
    In September 2015 Aryana was admitted to the Ulster hospital to try and sort out her feeding issues. Tests showed that she has an unsafe swallow which is why she was constantly ill until that point with chest infections. It was decided that she should be NG fed. This is normally a short term measure.
    We continued to try Aryana with various normal foods. The only food she can take without it causing her a major reaction is unflavoured dry corn puffs and corn pasta. That's it.

    In October of 2016 we had to take Aryana to the Great Portland Street Hospital in London to see the top gastrointestinal doctor in the U.K. He confirmed the diagnosis of FPIES - food protein induced enterocolitis. Protein which is found in all foods can send Aryana into shock. He recommended that we Liase with a specialist dietitian who is also based in London . She has been a great help to us, but is very expensive!

    Due to severe reflux, metabolic issues and low tone, Aryana has suffered from frequent apnea episodes. At night time her heart rate drops too low and she stops breathing. We have graciously been given a monitor from NARA- the breathing charity, which alerts us when her heart rate drops. Prior to this we had to take it in turns to stay awake and watch her.
    She also has severe difficulty going to the toilet. She is in so much pain that she passes out.

    Aryana is currently under the care of an endocrinologist due to borderline growth horm

    Updates

    1

    Darren Kerr

    Updates appear here

    • Darren Kerr2 years ago
      Darren Kerr

      Darren Kerr

      2 years ago
      Update from the Page owner

      Thank you to everyone who donated. It will change this little girls life for ever! I can't thank you enough for all you support.

      Share this update to help us raise more

    2 years ago

    Darren Kerr started crowdfunding

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    Page last updated on: 5/15/2017 20.53

    Supporters

    207

    • Darren Kane

      Darren Kane

      May 15, 2017

      Hope the doctors and nurses are able to do something to help Aryana.

      £20.00

    • Bryan McPhee

      Bryan McPhee

      May 14, 2017

      £20.00

    • Amy Hurley

      Amy Hurley

      May 14, 2017

      Your little beautys childhood is priceless, please God this helps give her the fresh start she deserves. Love to you all old friend xx

      £10.00

    • Peter Mandy & Courtney Scott

      Peter Mandy & Courtney Scott

      May 14, 2017

      Aryana your a wee superstar

      £10.00

    • Leanne Morrison

      Leanne Morrison

      May 14, 2017

      Hope you get the answers for your wee fighter 💞 Xx

      £10.00

    • Andreas Wohlmuth

      Andreas Wohlmuth

      May 14, 2017

      Wishing you all the best

      £50.00

    • Stuart Scarbrough

      Stuart Scarbrough

      May 13, 2017

      Love from Stuart , Colette and the Kids xx

      £20.00

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    Darren Kerr

    Darren Kerr

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