walking from the source of the Thames (near Gloucester ) to Oxford. 60 miles in 2 & 1/2 days

This year Band of brothers are coming together for their biggest annual walk yet for Jackson’s smile. 21st 22nd and 23rd April 2021. Darren garwood, mark garwood, steve king, craig armitage and our newsest memeber Andrew Clampet (jacksons dad, uncles and grandad ) will be walking from Kemble in gloucestershire to oxford, following the Thames ( over 2 1/2 days. Our first nights stop will be in Lechlade on Thames , the second night in stanton harcourt , leaving friday morning to folow the Thames into Oxford.

We are raising money to go towards a Hydro pod, a hydro pod is a specialist floating device that Jackson can sit in so we can bath him more easily. the hudro pod will be moulded to jacksons body shape (as jacksons spine is very twisted) Jackson loves a relaxing bath but as jackson grows we are finding it more difficult, trying to keep jacksons kneck supported as well as his bodyJackson to make sure he doesnt swallow any water or his own secretions.

The aqua bod will deffiently bring happiness and fun back to bath times For jackson.

😍For those of you that do not know Jackson’s story; Jackson has a rare disease- Krabbes. Krabbes is a life limiting disease which gave Jackson a life expectancy of 2. Starting life as a normal baby until 7 months when he started losing vital skills. Shortly after his 1st birthday we received the devastating diagnosis of Krabbes. Jackson is soon to be 7! 💪🏻 We have followed our own path with his care. He has a specialised organic diet, takes CBD oil and uses a hyperbaric chamber regularly. He is now fully dependent on us. He is immobile, cannot speak and sadly lost his laugh a while ago but it does return ocasionally. But he communicates in his own way, Jackson loves being read to sung to and enjoys as many cuddles he can get. It is our mission to give him as many life experiences, as much love and the best quality of life whilst he is here.

thank you so much for your support Xxxx