My beautiful wife Darshana Nagar sadly lost her life to Phyllodes on Saturday 24th September 2022.

After fighting this dreaded disease for 18 months with every ounce of her strength and willpower, it eventually spread to her brain and caused her to deteriorate very quickly. After learning of her diagnosis, Darshana was determined to do what she could to raise awareness and help fund research into this very rare form of cancer. My two amazing children and myself would like to continue this work in Darshana’s memory and are asking you to donate to this charity rather than sending flowers. All the money raised will go into funding research into Phyllodes – a cancer which doesn’t normally get the funding and awareness as much as other cancers.

Phyllodes are rare cancers which arise in breast tissue. They can be categorised into 3 types: benign, borderline and malignant. There are approximately 60 cases of malignant phyllodes cancers in England per year. We do not know how many benign or borderline tumours are diagnosed per year in England as this data is not routinely collected.

As these are such rare cancers there are currently no standardised national guidelines in the management of these cancers. At present many women who are diagnosed with this cancer are managed in non-specialised breast units where diagnosis, treatment and outcomes are variable.

We also know very little about the biology of these cancers and there have been no new ways of treating these cancers in many years.

The money raised for this charity will be used to support the creation of a national phyllodes consortia with the aim of:

1. Standardising care and treatment for women in the UK by creating a national guideline

2. Creating a network of clinicians and scientists interested in the area of phyllodes cancers to collect high quality clinical information as well as to further understand the biology of the cancer

3. To create high quality patient information about phyllodes cancers and the treatments that are available

We will be working on raising more awareness and the same time humbly request that you donate what you can to help the charity get a step closer to finding better treatment and eventually one day a cure.

Thank you.