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£1,810raised of £2,000 target by 33 supporters

Weʼre raising £2,000 to make a difference to the life of Josh and his mum Hannah, who are living with the effects of an undiagnosed syndrome that Josh was born with

Medway England

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Story

Our Grandson, Josh, is one of about 6,000 disabled British children born every year who have no diagnosis for their condition – they make up around 40 per cent of all disabled children. They are often referred to as SWAN children – suffering from Syndrome Without A Name.
They may have significant learning difficulties, facial features such as low-set ears, heart conditions, vision problems and epilepsy. Many, like Josh, cannot walk, talk, or eat without assistance.

Problems vary enormously from child to child, and SWAN is not an illness in its own right. Experts believe these conditions are genetic. But each case is thought to be the only one of its kind, which makes a proper diagnosis – and prognosis – incredibly difficult.

Each is given the same utterly frustrating news by doctors: there is no way of knowing what the future may hold for their child. Treatment is a matter of fire-fighting, tackling problems as they arise. It is impossible to pre-empt difficulties because there are no previous cases to reference.

For Hannah and Josh, normal life is planned around a seemingly endless round of medical appointments.

Any funds raised will help to improve their quality of life between appointments.

Keeping a smile on Josh's face is our main goal.

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Dave Wellard

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    10 months ago

    Dave Wellard started crowdfunding

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    Page last updated on: 5/21/2018 6:03 PM

    Supporters

    33

    • Eric Clarke

      Eric Clarke

      May 21, 2018

      Hope it went well and you recovered!

      £30.00

    • Tim Parrott

      Tim Parrott

      May 14, 2018

      Well done!!

    • Bruno Bohane

      Bruno Bohane

      May 11, 2018

      Nice one Dave...

      £20.00

    • Martin Williams

      Martin Williams

      May 11, 2018

      Good luck Dave!!

      £20.00

    • josh singleton

      josh singleton

      May 11, 2018

      Good luck Dave!

      £20.00

    • Mark Hilsdon

      Mark Hilsdon

      Oct 31, 2017

      Well done Dave, from all at RSK.

      £500.00

    • Tom Taylor

      Tom Taylor

      Oct 27, 2017

      Well done mate, hope your bums recovered...

      £20.00

    About the fundraiser
    Dave Wellard

    Dave Wellard

    Medway England

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