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Dave Wellard raised £1,810 from 33 supporters
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Closed 18/09/2018
Iʼve raised £1,810 to make a difference to the life of Josh and his mum Hannah, who are living with the effects of an undiagnosed syndrome that Josh was born with
- Medway England
- Funded on Tuesday, 18th September 2018
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Story
Our Grandson, Josh, is one of about 6,000 disabled British children born every year who have no diagnosis for their condition – they make up around 40 per cent of all disabled children. They are often referred to as SWAN children – suffering from Syndrome Without A Name.
They may have significant learning difficulties, facial features such as low-set ears, heart conditions, vision problems and epilepsy. Many, like Josh, cannot walk, talk, or eat without assistance.
Problems vary enormously from child to child, and SWAN is not an illness in its own right. Experts believe these conditions are genetic. But each case is thought to be the only one of its kind, which makes a proper diagnosis – and prognosis – incredibly difficult.
Each is given the same utterly frustrating news by doctors: there is no way of knowing what the future may hold for their child. Treatment is a matter of fire-fighting, tackling problems as they arise. It is impossible to pre-empt difficulties because there are no previous cases to reference.
For Hannah and Josh, normal life is planned around a seemingly endless round of medical appointments.
Any funds raised will help to improve their quality of life between appointments.
Keeping a smile on Josh's face is our main goal.
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Supporters
33
Eric Clarke
May 21, 2018
Hope it went well and you recovered!
£30.00
Tim Parrott
May 14, 2018
Well done!!
Bruno Bohane
May 11, 2018
Nice one Dave...
£20.00
Martin Williams
May 11, 2018
Good luck Dave!!
£20.00
josh singleton
May 11, 2018
Good luck Dave!
£20.00
Mark Hilsdon
Oct 31, 2017
Well done Dave, from all at RSK.
£500.00
Tom Taylor
Oct 27, 2017
Well done mate, hope your bums recovered...
£20.00
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