Weʼre raising £5,000 to help fund a blog about the experience of a colectomy and iliostomy for cancer.
- Bristol / Bristol Royal Infirmary NHS
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
This donation will help to fund the costs of creating and running a website and blog about the personal experience of undergoing the major surgical procedure of a colectomy (large bowel removal) and an ileostomy (small bowel diversion into a stoma on the anterior stomach wall). The procedure is undertaken for cancer, inflammatory bowel disease or chronic obstruction of the large bowel, sometimes as an emergency.
The surgical procedure is often very extensive, painful and may result in a hospital stay of 10-14 days. The procedure can be psychologically traumatic for patients, both in coping with the diagnosis of cancer but being left with the stoma and having to manage the bowel opening on the anterior stomach wall.
Whilst surgeons try to explain the need and consequences of the procedure the urgent nature leads little time for a proper understanding. Patients often have very significant problems coping with the psychological trauma and the practicalities of managing a stoma bag which may need emptying 4-8 times a day and changing every two days.
I have recently personally undergone this procedure in the NHS at the Bristol Royal Infirmary. As a surgeon myself trained in undertaking this surgical procedure and having advised patients, I have now experienced the trauma from the patients perspective as well. This means that I can provide a particular expertise, insight and understanding of the issues, difficulties, practicalities and the general tips and tricks of hygienically managing the aftermath and the ileostomy. I will explain in the blog all the daily difficulties which arise and describe the advice I received and how I coped and managed my ileostomy and effluent bag.
Your donation will go towards the cost of establishing and maintaining a website and blog. The website will be open to all and free to access. The website will be non-profit making and designed to helpfully inform the reader and general NHS or private patient undergoing this surgical procedure and being left with an ileostomy. As the author I will donate my time fee of charge for the benefit of other patients. However there are web design fees, hosting fees and content editing fees which are estimated at as much as £5,000 over the first year. The campaign is to raise £5,000 to get the blog established and up and running.
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- 3 months ago
David Cooper3 months ago
This crowdfunding campagn has just been launched. Please add your support to enable me to help others get through this terrible surgcial procedure and cope with their iliostomy.
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About the fundraiser
Bristol / Bristol Royal Infirmary NHS
I am a consultant surgeon in the South West trained in general surgery including large bowel surgery. Due to chronic diverticulitis I was forced to be a patient and have surgery myself. The NHS experiences and practical lessons are published for future patients in my blog avatar.