Weʼve raised £360 to support Ellie Grace Morgans to buy a HOGGI BINGO EVOLUTION SPECIAL NEEDS PUSHCHAIR. I am running the HOKA WINTER HALF MARATHON!
- Port Talbot, UK
- Funded on Saturday, 23rd February 2019
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Ellie is 8 years old and since birth has been diagnosed with
MACROCEPHALY- excess fluid in the ventricles of her brain
NEURONAL MIGRATION DISORDER - Brain abnormalities (incomplete brain formation). :
HYPERTONIA- Low muscle tone (minimal weight bearing)
GASTROSTOMY PEG FED- Feeds mainly on liquid meals through a specialist peg.
GLOBAL DEVELOPMENT DELAY- Effects learning, mobility and understanding
SEVERE OBSTRUCTIVE SLEEP APNOEA- Oxygen depletion during sleep
INFANTILE EXOTROPIA-Poor vision
CHROMOSOME 19 DELETION- Ellie's life future uncertain
LOW CLASS B SWITCH MEMORY CELLS- Unable to fight infection
NUTROPENIA- A lack of white blood cells, subcutaneous immunoglobulin infusions given weekly
UNSAFE SWALLOW- Aspirates fluid, danger of pneumonia
GENETIC- SWAN, Ellie has a Syndrome Without A Name.
The cost of the specialist pushchair needed for Ellie is around £2500 and would make a huge difference to her and the families life.
To help to contribute this cause I am running the https://toughrunneruk.com/events/hoka-half-marathon-2019/ / on Feb 9th. It's a tough trail half marathon with lots of hills, thrills and spills!
Please help and you can and make a difference to Ellie's life.
- 1 year ago
David Williams1 year ago
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David Williams started crowdfunding
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Feb 9, 2019
Feb 9, 2019
Great effort today! Well done and good luck with the fundraising. I hope you get what you need to help this little girl. (I am the lady who spoke to you on the never ending last 2k!)
Dec 16, 2018
Nov 20, 2018
Nov 19, 2018
Good Luck David - hope you manage to raise the funds required :)
Nov 5, 2018
Good Luck David, Fantastic your doing this for Ellie.
Nov 5, 2018
Good luck David!!
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