Ellie is 8 years old and since birth has been diagnosed with

MACROCEPHALY- excess fluid in the ventricles of her brain

NEURONAL MIGRATION DISORDER - Brain abnormalities (incomplete brain formation). :

HYPERTONIA- Low muscle tone (minimal weight bearing)

GASTROSTOMY PEG FED- Feeds mainly on liquid meals through a specialist peg.

GLOBAL DEVELOPMENT DELAY- Effects learning, mobility and understanding

SEVERE OBSTRUCTIVE SLEEP APNOEA- Oxygen depletion during sleep

INFANTILE EXOTROPIA-Poor vision

CHROMOSOME 19 DELETION- Ellie's life future uncertain

LOW CLASS B SWITCH MEMORY CELLS- Unable to fight infection

NUTROPENIA- A lack of white blood cells, subcutaneous immunoglobulin infusions given weekly

UNSAFE SWALLOW- Aspirates fluid, danger of pneumonia

GENETIC- SWAN, Ellie has a Syndrome Without A Name.

The cost of the specialist pushchair needed for Ellie is around £2500 and would make a huge difference to her and the families life.

To help to contribute this cause I am running the https://toughrunneruk.com/events/hoka-half-marathon-2019/ / on Feb 9th. It's a tough trail half marathon with lots of hills, thrills and spills!

Please help and you can and make a difference to Ellie's life.