Weʼve raised £195 to Help fund the opening of the UKs 1st Fibromyalgia, center to drive our work forward helping those with Fibro , Ptsd , Chronic pain.
- Deeside, UK
- Funded on Wednesday, 8th August 2018
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fibromyalgia is a terrible incurable illness that so little is known about. the illness is a neurological condition that leaves the victim in constant pain and unable to function with daily life. many Doctors do not believe the condition even exists such is its complexity and tell suffers that its all in their heads. They do not understand the condition and are failing their community. those that do understand are then sadly let down by the lack of help that the NHS can provide. I aim to change that with a small medical team we are taking our fight to the Goverment and to the NHS to prove the care and attitude of NO Bodies patient is simply wrong.
We believe that with the expertise and knowledge we have we can change the way this condition is dealt with. No more fend for yourself , No more Isolation ,No more not being Believed. We can turn things around with a center that is totally dedicated to this illness and those that stem from it. We have Rock off Fibro working in the community to raise awarness of the condition through music and art. But to seriously impact on the condition we need to increase the funds generated to help fund a UK first right here in Deeside.
this illness needs a voice and it needs a center that is proactive in helping those with the condition, people are losing their lives through not being able to cope any longer and the dispair it brings. NO more we need this to change and fast.
I and the team are working to convince the NHS and Welsh Goverment that we need help and that we need this funding before they are over run by this illness, I would like to raise around £20,000 to start a fund to make this happen. if we can open one center and show them its the way forward then we can open two or three and more. If we can raise more than 20K then that would be amazing as we will need it. there's a long hard road ahead but we can change the way we deal and treat this illness
- 3 years ago
Jackie williams3 years ago
please forward this on to friends, to help us raise awareness of this illness that has no cure
Share this update to help us raise more
Jackie williams started crowdfunding
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Jul 7, 2018
As a fibro sufferer I know this is a very worthy cause. Good luck x
Apr 16, 2018
I know a few suffers and although people are subject to change because of there character, i think nutrition plays a major part
Apr 16, 2018
I suffer with fibromyalgia. Good luck with this venture.
Apr 11, 2018
Apr 10, 2018
Suffered with this disease for years would be good to have a centre that understands would be ideal if a hydro therapy pool could be added at some point.Good luck sorry can't afford more will share
Apr 10, 2018
Moved and inspired by your efforts and achievements to date with Rock Off Fibro. Can’t make the gig unfortunately but happy to contribute to the cause.
Apr 10, 2018
Wishing you every success with this venture! A very worthy cause.
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About the fundraiser
i have suffered with the condition for 5years and it has stolen my life. from running 8 miles a day and circuit training i now find i spend most of my like bed bound or in a wheelchair through horrific pain and the many ailments of this illness & fighting the darkness it brings.