This is Niall he is 13 years of age he has a very rare disease called achalaisa. This is a incurable esophagus mobility disease, that stops food and drinks reaching his stomach.The last 12 months he has had 8 surgery's all nhs funded but all have been unsuccessful due to there is not any literature for his surgeon to follow. I have explored the net looking for advice on surgeon's in the UK but due to it being so rare there are not many to choose from..I have seen some proffesor one in Bristol and one in London. Also there is a clinic called the mayo clinic in American were most of the the Americas on the achalaisa Facebook page say it's has the best surgeon. But the price is around 20,000 pound.i wish I could afford this myself, but my husband is self employed and the last year he has lost a lot of work due to our son Niall being in hospital so much. We have no transport due to not being able to afford the car we had and also fell behind with a lot of bills.please if you can help im not only asking for some funds but if you all can share this around as much as possible that would be great.thank you for taking your time to read this. Niall xx