Story
Joey is 8 years old and he is the most beautiful young boy who has gone through so much in his short life.
He was diagnosed with a brain tumour (Craniopharyngioma) at the age of 2. He has had two debulkings done when he was 2 and unfortunately the damage was already done. He has no pituitary function and is blind in his left eye because the tumour destroyed his pituitary gland and his optic nerve. He will be on hormone replacement therapy for the rest of his life.
On the 14 May 18 this year we found out the tumour is back. It completely turned our lifes upside down. Joey went for another debulking on 20 June 18. Unfortunately the neurosurgeons couldn't remove all of the tumour as it has adhered itself to main arteries and veins in his brain.
He will start radiotherapy for 5 weeks and 3 days on 8 August 18 at UCLH in London.
Please support him through this horrible time and hopefully in the next few weeks we can put an end to this monster. Once and for all.
Thank you