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Deb Roberts raised £775 from 52 supporters.

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Closed 17/01/2018

77%
£775raised of £1,000 target by 52 supporters

    Weʼve raised £775 to help fund equipment for Art and Relaxation workshops, patient refreshments and to enable the staff to keep abreast of the latest research.

    Location
    Liverpool, United Kingdom
    Time left
    Funded on Wednesday, 17th January 2018

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    Story

    I am a member of a small and dedicated group of health professionals providing specialist treatment and support to those living with Chronic Fatigue Syndrome (CFS), also known as ME, for the North West of England.

    Those diagnosed with CFS/ME experience overwhelming and enduring symptoms that overtake their lives. They are not just tired but completely unable to function. Our patients describe losing their physical function, relationships, jobs and social networks.

    '....CFS is life changing....'

    They are likely to be very unwell for a number of years and often have very limited support or understanding from those around them, including health professionals and employers.

    '....I feel like my GP does not believe I have a real illness...'

    It is a devastating long term health condition affecting the most productive members of our society in both professional careers and those depended upon in family networks.

    '....Stop judging and support....'

    As it is more common than Multiple Sclerosis (MS), most people know someone who has been through this experience and the impact it has.

    '....My whole body is in hell....'

    As one of only a handful of specialist NHS services the team manage a large rate of referrals and offer one of the few research based rehabilitation programmes. Individual therapy sessions are complimented with workshops.

    '....The service has helped me believe I finally have hope.....'

    The therapists stress the importance of group interventions to build connections with others who understand, succeed at achievable activity and find new ways to gain meaning as patients rebuild their lives.  

    '....Its really nice to get back to being me....'

    I am planning to run the Scouse 5K on 15th October around Liverpool city centre. I want to highlight the condition to as wide an audience as possible to create better insight and acknowledgement of the severity of the illness.

    '....Try not to lose yourself....'

    I am raising money for resources to directly benefit the patients, particularly art and relaxation activities, and to sustain the refreshments offered by the department.

    I also want to create a sustainable fund for staff to remain updated in CFS/ME research and practice.

    At the present time the staff fund all of these costs themselves.

    Updates

    10

    • Deb Roberts4 months ago
      Deb Roberts

      Deb Roberts

      4 months ago

      Hello lovely supporters! And the donations just keep on coming... I'm so delighted that people are taking the time to show they take the illness seriously and offer support our small but committed service. We are very grateful. Thank you!!

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    • Deb Roberts4 months ago
      Deb Roberts

      Deb Roberts

      4 months ago

      One week on from the race I can report no ill effects and the donations continue to roll in! I can't thank you enough for your generosity. Both those touched by the condition, either as someone living with CFS/ME, or a supporter watching its effect, your support is so very much appreciated.

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    • Deb Roberts4 months ago
      Deb Roberts

      Deb Roberts

      4 months ago

      And the race is run! Tough on the uphill but what a great atmosphere. Thanks again for all the support - particularly those who hung around from start to finish today. And for those of you who haven't actually got round to it yet ... get your donation in before it's too late... x

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    5 months ago

    Deb Roberts started crowdfunding

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    Supporters

    52

    • Jeanette Hender

      Jeanette Hender

      Nov 3, 2017

      Well done Debbie!

      £10.00

    • Yvonne Neary

      Yvonne Neary

      Oct 31, 2017

      Just like to say a big Thank you Deb for raising awareness for CFS/ME.It is a constant struggle with everything & every day is a challenge. I appreciate everything you all do to help us all x

      £20.00

    • christine oliver

      christine oliver

      Oct 31, 2017

    • Carole Firth

      Carole Firth

      Oct 22, 2017

      Well done,Deb. Hope more research can be done!

      £50.00

    • Sheila

      Sheila

      Oct 19, 2017

      Well done Deb!

      £15.00

    • Sasha Spyrou

      Sasha Spyrou

      Oct 19, 2017

      Really appreciate being able to access the ME group 😊

      £10.00

    • Tony & Chris Mullen

      Tony & Chris Mullen

      Oct 17, 2017

      Praying that you will have the strength ad stamina. Well done x

      £10.00

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    About Crowdfunding
    About the fundraiser
    Deb Roberts

    Deb Roberts

    Liverpool, United Kingdom

    Deb is a Clinical Nurse Specialist and Nurse Researcher at the Liverpool CFS/ME specialist service at Broadgreen Hospital. She has eleven years experience of working with patients in this field and is passionate about raising awareness and improving local service delivery.

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