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Story
On December 13, 2017, a great man passed away. He was loved by thousands. Almost 11 years ago Dee started a Facebook support group for people with narcolepsy, it was called Narcolepsy Friends. Even though it was a closed group Dee let in thousands. He befriended and helped practically every individual member. Those members remember Dee with loving thoughts and respected him in a way that not many can ever hope to be respected.
Dee lived his life to the fullest. He didn't let narcolepsy and cataplexy stand in his way. He made video after video of what it was like to live with this devastating, debilitating disorder. He had videos of him walking his dog, going for walks, playing his guitar, never able to go very far before a sleep attack or cataplexy attack would take him to the ground. But he would get right back up and start again.
Dee put up with a lot because of narcolepsy and cataplexy. He told me some heartbreaking stories. He told me how when he would fall down from a cataplexy attack he had been kicked in the stomach, head, back, and groin. He had been spat on and urinated on. Most people would've just given up. Not Dee, he just kept going. Helping others, while dealing with some of the worst narcolepsy and cataplexy I'd ever seen. He almost always remained cheerful.
Through his T.V. documentaries and his videos, he gave strength to thousands more to go on with their lives even though they suffered from narcolepsy. (Search for Mr Sleepy on YouTube or Dee Daud.) I know he gave me strength every day. I don't begin to have N w/C nearly as bad as Dee had it. But there he was, always offering encouragement and strength even as he struggled through.
I know I am not the only one that he touched. However, I can only say how he touched me personally. He gave me the willpower to start my own support groups and to advocate for people with narcolepsy, PWN.
Updates
4
- 6 years ago
K Hall
6 years agoShare this update to help us raise more
- 6 years ago
K Hall
6 years agoThank you so much for taking the time to read about this fundraising project and thank you to everyone who has donated so far. It means a lot to Dee's family that so many friends have written such lovely comments about their relationship with Dee and how much they loved him. We are pushing the goal to £300 as there are still some people who asked for this to stay open a while longer to enable them to donate when they have the funds.
Share this update to help us raise more
- 6 years ago
K Hall
6 years agoShare this update to help us raise more
K Hall started crowdfunding
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Supporters
15
Amanda Maldonado
Jan 21, 2018
Dee made such an impact on the Narcolepsy community. He will be truly missed.
£50.00
Randy Klein
Jan 11, 2018
£25.00
Geoff Pullinger
Jan 10, 2018
£50.00
Rosalinda Obregon
Jan 9, 2018
I wish I had it all to give you and then some. Big hugs!
Michelle Scott
Jan 8, 2018
With love, xo
£20.00
Anonymous
Jan 2, 2018
Missing this dear man, but prayers he is healed and resting peacefully, at last
£20.00
Anonymous
Jan 1, 2018
What is crowdfunding?
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