I am raising money to donate to CDH UK in memory of my little girl Myla-Jai who sadly passed away at just 3 days old. On my 20 weeks scan we found out Myla had CDH i had never herd of it before. I was having scans every 3 weeks meeting surgons and different doctors every week. As i got further on i found more out about CDH i learnt that it was very life threatening but the hosptial and us as her family had alot of hope we got told she had a high survial chance. At 32 weeks i went into labour with Myla and had her on the 27.07.18 at 6.50am she weighed 4lb2oz which is a good weight. As soon as she was born she was took away from us so they could stablise her on oxygen and other medications they also gave her muscle relaxent so she couldnt move she was also on a ventaltor. She was doing great then as the days went on she started getting worse she was on the highest oxygen she could be on and it wasnt doing much for her she was on medication for her blood pressure they kept changing medications and doses of each. The day before she passed away we had a meeting with the consultent and she said she was woried that myla-jai wouldnt make it that was one of the worse days ever. The day after come and her blood pressure was really low they couldnt do much more for her so we held her untill she passed. She passed away from CDH and PPHN.
CDH in a baby?
A CDH is a hole in the diaphragm (the muscle under the lungs that is responsible for breathing) that allows organs from the abdomen to move into the chest. CDHs affect about one in every 2,500 babies. A CDH can often be diagnosed during a routine ultrasound.
I never thought anything like this would happen to us.
We want to raise money for the CDH UK charity
Also come along to our event on the 26th august 12-6 at barrell pub chapeltown sheffield theres plenty there to do to help raise money.
We love and miss our little princess Myla-Jai Sharon Thomas
Anything will help. We want people to k ow about CDH