On the 28th of November, my daughter Devon was diagnosed with a rare childhood cancer, Ewings sarcoma, a cancerous tumour growing in her pelvis. As you can imagine this news as a huge shock to her and our family.

Due to the nature of this illness and the positioning so close to vital organs, Devon has been given the fantastic opportunity to receive proton beam therapy which we hope will completely destroy all cancerous cells. Unfortunately, this is not currently available to her in the UK which means an unavoidable journey to a clinic in Essen, Germany. The purpose of this treatment is to minimise some of the side effects Devon would experience by having standard radiotherapy, which would be extensive and debilitating due to the positioning of her tumour. The possibility of surgery is potentially too complicated if not life changing to perform. Proton therapy is not completely without its side effects, Devon will still experience side effects long term, however minimal in comparison.

Devon is a very kind, thoughtful and strong young lady, and recently donated her own hair and in doing so raised almost £3000 for the little princess trust.

Devon has taken her illness in her stride, she is a bright, courageous and witty young lady, as a family it has enabled us to draw a lot of strength from her. No matter how ill she feels or how bad her pain gets she never forgets herself and is still always her polite, well mannered, amazing self. She reminds us that things won't always be this difficult, there is always light at the end of the tunnel.

Devons treatment in Germany will last approximately 3 months. The NHS cover associated costs of treatment but the financial impact logistically as a family is massive. Fortunately, we have an amazing circle of friends and family who have generously offered their time and efforts to help us fundraise to make this much-needed treatment accessible to Devon, this is why any donations would be greatly appreciated.

Thank you x