TAKE THE PRINCESS TO THE CASTLE

We are an enthusiastic college group of students studying Level 3 hairdressing at Nottingham College. We are creating a charitable event for our social action project to support Milanna-may’s monthly prescription. On the 21st March 2024 we will be doing a 10k sponsored walk with the finish line being Nottingham Castle. We would be grateful for any support you could give. To see more information on Milanna-may’s story see below:

Milanna-May is a 19 month old baby girl from Nottingham who suffers from Mitochondrial Disease, her mutation is rarer than rare, NARS2.

She was given the diagnosis at 9 months old following seizures. The prognosis is Milanna-may wont outlive childhood due to this cruel, murdering disease. The affects of the disease are poor growth, loss of muscle coordination, muscle weakness. Neurological problems, including seizures. Autism spectrum disorder, represented by a variety of ASD characteristics. Visual and/or hearing problems. Developmental delays and learning disabilities. Heart, liver or kidney disease.

As a family they are raising funds for the £1100 private healthcare prescription which they pay monthly. The medication Milanna-may has been taking is called Bedrolite. Since taking this medication her seizures are less severe. Prior to this medication her condition resulted many very severe seizures resulting in 9 induced comas.

The NHS won’t support this medication due to there not being enough research into Milanna-may’s condition, however the family are aware of one little boy with the same diagnosis who takes the same medication and it’s worked wonders for him.

Please help us, help this beautiful little girl & her family.

When donating please include the name of the person you are sponsoring.