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Adam Burgess raised £490 from 28 supporters.

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Closed 04/10/2017

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£490raised of £400 target by 28 supporters

    Weʼve raised £490 to Help buy Joseph a new wheelchair

    Funded on Wednesday, 4th October 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Joseph is the son of one of my Teaching colleagues at school.

    Joseph is 9 years old and has SMA Type 2 (Spinal Muscular Atrophy). SMA is a life limiting condition which results in generalised progressive muscle weakness. He has never been able to crawl or walk, and over the years he has lost strength in his arms, hands, neck and swallowing. He has a gastrostomy to help ensure he receives the calories and nutrition to keep him well. He also uses non-invasive ventilation at night to help with his breathing and to steer off potentially life threatening chest infections.

    His parents are fundraising for a new wheelchair for Joseph. They need to raise at least £20,000 by May 2018 so that he can have his new wheelchair in time for starting high school in September 2018.

    Despite all of this, Joseph is a beautiful, bright and cheerful little boy who does a terrific job of just getting on with life despite his severe disabilities. He has driven a powered wheelchair since he was 3 and loves participating in wheelchair football (the photo is of him with the trophy for the North West Powerchair Football League which his team recently won). He is also a very keen Manchester United supporter and he was lucky enough to meet the team at a dream day in October 2016.

    Joseph's current wheelchair is an Etac Balder and he has had this chair since he was 4 years old. He was fortunate enough to get this chair fully funded by the Joseph Patrick Trust from Muscular Dystrophy UK. At the time, they were Tesco charity of the year and therefore were in a position to fully fund wheelchairs. Unfortunately such funding is just not available any more.

    Joseph's current wheelchair became obsolete a few years ago which makes finding parts for any repair work very, very difficult. We know that Joseph will need a new wheelchair to replace the Balder before parts are completely unavailable.

    Joseph is due to start high school in September 2018. Discussions with his physiotherapist and the high school have suggested that the best way forward is a sit to stand chair. The school is not very accessible and feel it would be difficult to accommodate both his chair and stander, which he has to use on a daily basis for physiotherapy. A sit to stand chair is not available on the NHS and will be at least £20,000.

    This is a huge amount of money and his parents are fundraising now so that hopefully he will have his new wheelchair in time for starting high school in September 2018.

    Both his parents work very hard to ensure Joseph has the best possible life. This new wheelchair would further improve his mobility and allow him to take an active part in lots of activities and help him with his education.

    Many people are doing different activities to raise money. Both his parents are running the Great North Run.

    Every little helps Joseph in funding his new wheelchair. Therefore, I am running the Macclesfield Half Marathon on Sunday 24th September to raise some funds. This is my second ever half marathon. My first was when I was 15 !!!!!!!! As you may know I am now 48 !!!!!!!!!!!!

    I would be grateful for any sponsorship you can give me for this excellent cause.

    Many thanks

    Adam xx

    Updates

    1

    • Adam Burgess10 months ago
      Adam Burgess

      Adam Burgess

      10 months ago

      One week to go!!!!! Thursday, Friday - Ran 10K on both days. Resting this weekend and then a few 5K's during the week. Starting to realise the enormity of what I am going to do!!! Just looked at the course on GoogleMaps and it's going to be tough. Help me reach my target and spur me on!!!

      Update from the Page owner

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    1 year ago

    Adam Burgess started crowdfunding

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    Page last updated on: 9/25/2017 8:46 AM

    Supporters

    28

    • Michelle Gale-Howard

      Michelle Gale-Howard

      Sep 25, 2017

      Well done adam! You should be very proud of yourself. Michelle x

      £10.00

    • Veronica Barnsley

      Veronica Barnsley

      Sep 24, 2017

      Nice one Adam!

      £10.00

    • Adrian  Bishop

      Adrian Bishop

      Sep 24, 2017

      Go Adam you can do it

      £20.00

    • Jo and Graeme

      Jo and Graeme

      Sep 24, 2017

      Good luck Adam!

      £10.00

    • Beckie and Toby

      Beckie and Toby

      Sep 24, 2017

      Good luck today Adam.😀😀🎖

      £20.00

    • Michelle Egerton

      Michelle Egerton

      Sep 23, 2017

      Good luck and good for you :)

      £10.00

    • Ann Morris

      Ann Morris

      Sep 23, 2017

      Good Luck!

      £10.00

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    Adam Burgess

    Adam Burgess

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