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£1,358raised of £2,000 target by 112 supporters

Weʼre raising £2,000 to find a cure for Nephrotic Syndrome and FSGS

Lincoln, United Kingdom
13 days to go

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My little boy Dylan is 5 years old. He is a typical cheeky little boy who loves Ben 10, LEGO, playing with friends and looking after his little sister Sophie.

Dylan has a rare kidney disease. Dylan was diagnosed with Nephrotic Syndrome in January 2018. There is no known cure for Nephrotic Syndrome but 9 out of 10 children respond to steroid treatment so we had high hopes! Unfortunately Dylan is the 1 in 10 that is steroid resistant. 32 days of steroids did nothing to help Dylan so he was diagnosed with Steroid Resistant Nephrotic Syndrome and given a biopsy that later confirmed our biggest fear that he has FSGS, or focal segmental glomerulosclerosis. NephCure explain it as "FSGS is a rare disease that attacks the kidney’s filtering units (glomeruli) causing serious scarring which leads to permanent kidney damage and even failure. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome."

So! We need a cure! There are geniuses that are working hard to find a cure for this awful disease and we are on a mission to help them get that cure sooner.

I can't thank everyone enough. From the bottom of my heart thank you for caring about Dylan and donating. He's my world and I really appreciate it.

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Rachael Ravenhill

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    1 year ago

    Rachael Ravenhill started crowdfunding

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    Page last updated on: 12/9/2018 8:24 AM



    • Paula Whiting

      Paula Whiting

      Dec 9, 2018

      Hoping for a cure for your brave little boy x


    • Nikki LeDieu

      Nikki LeDieu

      Jul 30, 2018

      A little thankyou for looking after our pooch. Thankyou all so much and hope this helps a bit xxx


    • Lauren Perry

      Lauren Perry

      Jul 8, 2018

      So proud of how well you are all doing. X


    • Patricia Ravenhill

      Patricia Ravenhill

      Jun 28, 2018

      This is from mandy xx


    • Pauline Clements

      Pauline Clements

      Jun 22, 2018

      Sending much love and hope x


    • Lee Ambler

      Lee Ambler

      Jun 22, 2018

      Best wishes from lee and family. Xx


    • Patricia Ravenhill

      Patricia Ravenhill

      Jun 21, 2018

      Sending another donation for Dylan's research xx


    Rachael Ravenhill

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    About the fundraiser
    Rachael Ravenhill

    Rachael Ravenhill

    Lincoln, United Kingdom

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