Weʼre raising £2,000 to find a cure for Nephrotic Syndrome and FSGS
- Lincoln, United Kingdom
- 13 days to go
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The page owner is responsible for the distribution of funds raised.
My little boy Dylan is 5 years old. He is a typical cheeky little boy who loves Ben 10, LEGO, playing with friends and looking after his little sister Sophie.
Dylan has a rare kidney disease. Dylan was diagnosed with Nephrotic Syndrome in January 2018. There is no known cure for Nephrotic Syndrome but 9 out of 10 children respond to steroid treatment so we had high hopes! Unfortunately Dylan is the 1 in 10 that is steroid resistant. 32 days of steroids did nothing to help Dylan so he was diagnosed with Steroid Resistant Nephrotic Syndrome and given a biopsy that later confirmed our biggest fear that he has FSGS, or focal segmental glomerulosclerosis. NephCure explain it as "FSGS is a rare disease that attacks the kidney’s filtering units (glomeruli) causing serious scarring which leads to permanent kidney damage and even failure. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome."
So! We need a cure! There are geniuses that are working hard to find a cure for this awful disease and we are on a mission to help them get that cure sooner.
I can't thank everyone enough. From the bottom of my heart thank you for caring about Dylan and donating. He's my world and I really appreciate it.
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Rachael Ravenhill started crowdfunding
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Dec 9, 2018
Hoping for a cure for your brave little boy x
Jul 30, 2018
A little thankyou for looking after our pooch. Thankyou all so much and hope this helps a bit xxx
Jul 8, 2018
So proud of how well you are all doing. X
Jun 28, 2018
This is from mandy xx
Jun 22, 2018
Sending much love and hope x
Jun 22, 2018
Best wishes from lee and family. Xx
Jun 21, 2018
Sending another donation for Dylan's research xx
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