Update, Dylan has now been recieving treatment for over a year it wont let me ammend the origional wording but unfortunately his plan has changed quite a lot since then. We had hoped to have been off of treatment by now as stated in the original story and in remission by now but unfortunately he is now onlie 5 courses into 12 of oral chemotherapy so still a very long way to go! Dylan so far has had 14 courses of high strength chemotherap, 6 weeks of proton beam therapy and 2 weeks of radio therapy before then starting on his oral chemo. Surgury isnt an option for Dylan we found his mass was inoperable very early on and he is also now left with some quite severe lifelong disabilities meaning he cant live his life like a normal child would he cant run, jump, and do sports like other children would but thankfully he can still do his most favourite thing! Ride his ponies! And since being diognosed he has put so much effort into becomming the best dressage rider he can be, recently claiming the national champion title at RDA grade 6 freestyle open whilst only being 8 years old! It will be Dylans choice how we use the money for him as it always would of been and it will be used to make his dreams come true after enduring what most adults could not all whilst keeping a smile firmly planted on his face!

Dylan has always been known for living life to the full loving his school work and in his spare time riding and competing his ponies however Dylan is now unable to use his left leg relying on crutches and a wheelchair to protect his fragile bones and has embarked a long treatment plan of aggressive chemotherapy, specialised radiotherapy and possibly surgery that will last nearly a year.. .
Dylan recently started his 5th course of chemotherapy and unbelievably he continues to be a funny, full of life, pony mad, chatty, outgoing little boy who no matter what is always seen smiling! Utterly inspirational!
We are hoping to raise money for Dylan to have an adventure of his choice after his treatment plan has finished and to also raise awareness of Ewings and its symptoms so that no other child has to wait in pain as long as Dylan did before it was picked up and diagnosed.

Dylan’s Storey.
Dylan growing up has always had growing pains, something most children will experience. But on October the 24th 2021 Dylan’s mum thought the pain Dylan was in that day due to no apparent reason seemed too chronic for growing pains, so she took Dylan to see a GP at a walk in centre who referred him to A & E for X-rays with suspected perthes, the X-rays came back clear and the A and E doctor said it must in fact be growing pains as when examined Dylan showed no flinching or discomfort and sent them home. He continued to have on and off ‘growing pains’ that were painful at the time but manageable until April this year, when the pain got progressively worse and Dylan developed a limp during May and June. At this point Dylan was referred to physiotherapy to help with the chronic growing pains, the diognosis remained the same, his muscles had became short and tight due to compensation and his limp was just habitual. Dylan was given two pages of exercises to help strengthen his left leg and if no better after three months was told to return for more physio. A month passed and Dylan was no better, in fact he seemed to be getting worse, and with a gut feeling something still wasnt right they returned to A & E who after more clear X-rays came to the same diagnosis and sent Dylan home to carry on as he was. The following day the phone rang and Dylan was asked to return after the new radiographs had been compared to those taken previously and small descrepancies had been spotted. They suspected he possibly had septic arthritis however on returning to A & E Dylan was examined by the orthopaedics department who found a large mass protruding into his stomach from his pelvis. He was kept in until the next day when he was sent for an MRI and the following day he was transfered to Addenbrookes, Dylan’s local pediactric onchology specialists. Addenbrooks informed Dylan’s Mum and Dad that unfortunately what they saw on the mri to them looked like cancer so his biopsy, ct scan of his lungs and a full body pet scan where booked that week to determine the type of cancer Dylan had. Dylan’s results came back showing he has Ewings Sarcoma a form of bone cancer and unfortunately it looked likely that it had recently begun to spread to his lungs too.

Treatment Plan
Dylans journey to get better is well under way…. He will have 14 fortnightly courses of chemotherapy with proton beam laser radiotherapy running alongside after his 9th course for 6 weeks and then possibly surgery he will then also need radiotherapy on his lungs too… his treatment isn’t expected to finish until April next year.

Facts
Ewings sarcoma is a type of bone or soft tissue cancer that primarily occurs in children or young adults. It is an aggressive type of cancer that can spread to other bones, lungs and bone marrow. Pain starts intermittently and then can progress to become more consistent with some weakness and numbness in the affected area. A palpable mass is often present, bones can weaken and result in small fractures.
The exact cause of Ewings sarcoma is unknown, most cases are thought to occur randomly and for absolutely no reason.
Around 26 children per year are diagnosed with Ewings sarcoma in the UK each year.
Facts (source NHS website https://www.nhs.uk/conditions/ewing........
Ewings sarcoma is a rare type of cancer that affects bones or the tissue around bones.
Ewings sarcoma mainly affects children and young people. It is more common in males.
Ewings sarcoma mainly affects the legs, pelvis, arms, ribs and spine.