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Erin Meegan raised £14,493 from 562 supporters

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Closed 01/05/2020

64%
£14,493
raised of £22,500 target by 562 supporters

    Weʼve raised £14,493 to fund Lifesaving Neurosurgery for Erin Meegan #ErinAid

    UK
    Funded on Friday, 1st May 2020

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    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Update 18/11/2019

    Erin has made it successfully through the surgery, and is doing really well in her recovery. We’re still fundraising in the hopes that through the kindness of our community we’ll be able to cover the tremendous debt we’ve taken on for our shortfall in funds – this will put us in the best position to service Erin’s significant future care costs. We’d have never made it this far without the generous support of everyone who has contributed, for which we’re forever grateful. Given the severity of Erin’s condition, we are feeling so blessed that we were able to get in for a surgery date this year. The surgical team here let us know just how lucky we were to be seen when we were, as on opening her up, there was significant unnatural movement in her C0-C2 verterbrae.

    Erin has become very unwell in recent years as a result of brainstem compression due to instability in her neck, leaving her bedridden. She has been offered life-saving surgery in Barcelona and needs your help to get there. There are very few Neurosurgeons worldwide with the specialism for Erin's medical circumstances. We need to raise this money by 1 November 2019 as Erin’s condition is rapidly deteriorating. Please help in any way you can.

    Any and all donations are welcome and greatly appreciated.

    How did this happen?

    Erin has a connective tissue disorder which affects her collagen production; leading to various problems such as loose ligaments, joints, blood vessels and weak tissues.

    Those of you who know Erin are probably aware that she has undergone neurosurgery in the past for Trigeminal Neuralgia (successfully) and it is likely that the connective tissue disorder can retrospectively take credit for that too.

    She has now been diagnosed with severe instability in her neck due to the weak ligaments resulting in cranio-cervical instability, atlanto-axial instability, sub-axial instability and bilateral jugular vein compression (we’ve been informed that the left vein is completely collapsed). This means each time her head moves damage is caused to her brain stem and her skull is too heavy for her neck to support.

    That sounds complicated. What's the impact on her life?

    The compression causes a constellation of symptoms including daily neck and head aches, chronic pain, problems with memory and speech, tinnitus, pins and needles, vision disturbance, frequent vomiting and nausea and dysfunction of the autonomic nervous system (such as breathing difficulties, postural orthostatic tachycardia syndrome, and poor sleep). Erin now spends well over 20 hours a day lying down and is in constant pain. To avoid further damage, worsening symptoms and dislocation of her neck, she has to use a cervical collar to aid immobilisation.

    What’s the solution?

    Erin will need to have her neck and skull fused with titanium pins to create the column of support necessary to remove the compression of her brain stem, jugular veins, stop the sliding of her skull and the dislocation of her neck. She will lose up to 100% mobility of her neck, but this is a small price to pay given her horrific quality of life.

    How can we help?

    If you can contribute in any small or large way by donating and sharing her campaign it would mean the world to us. We know everyone has financial struggles, but if you can miss that coffee, avocado toast or that takeaway it can really make a difference.

    If you are able to have a dress-up day, cake sale or similar at your school, work or club in aid of her cause that would be absolutely amazing. Community spirit is how we are going to be able to achieve what we need to.

    What's the ultimate goal?

    After Erin's surgery and time to recover, she hopes to be able to live a meaningful life again, complete the final two units of her postgraduate degree, strengthen her body to maintain her other joints but most importantly, to start a family and enjoy the supportive and wonderful family and friends she already has!

    ErinAid

    More information on craniocervical instability

    Information on Erin's super surgeon

    Updates

    6

    • Erin Meegan7 months ago
      Erin Meegan

      Erin Meegan

      7 months ago

      Erin has made it successfully through the surgery and is recovering beautifully. We’re still fundraising as we’ve not managed to cover our significant costs and have accumulated some severe debt, but are regardless feeling great about Erin’s progress. Please keep sharing our story, and as always, thank you for your support – we’d have never made it this far without you.

      Share this update to help us raise more

    • Erin Meegan7 months ago
      Erin Meegan

      Erin Meegan

      7 months ago

      Thanks everyone for your continued support. Through events and other donations we've been able to again reduce our target to £22,500. Please keep sharing our story and thank you again all for your generosity. We can't do this without you!

      Share this update to help us raise more

    • Erin Meegan7 months ago
      Erin Meegan

      Erin Meegan

      7 months ago

      Through your generous support we’re able to reduce the target to £27k as we’ve raised the remainder of the required £75k target through events, offline donations and other platforms! For continuing updates on Erin’s journey follow @erinaid2019 on Facebook. Thank you again to everyone that has donated and helped us get to this stage.

      Share this update to help us raise more

    10 months ago

    Erin Meegan started crowdfunding

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    Page last updated on: 2/16/2020 23.59

    Supporters

    562

    • Lisa Robinson

      Lisa Robinson

      Feb 16, 2020

      Learnt of your story through my best friend from primary school! <3 I hope you get all the help you need. Sending love xxx

      £30.00

    • Chloe Bubb

      Chloe Bubb

      Dec 14, 2019

      Won £10 on the lottery, and this would be more beneficial to you than a couple of beers for me. x

      £10.00

    • Janet Horton

      Janet Horton

      Dec 3, 2019

      Erin I want to see that wonderful, joyful smile again, look how far you have come - such a strong young woman xx

      £50.00

    • Anonymous

      Anonymous

      Dec 1, 2019

      Sending lots of hope and love to you all xxx

      £20.00

    • Lisa Walsh

      Lisa Walsh

      Dec 1, 2019

      Keep going Erin! I’m so sorry to hear of your recent setback but your story is being heard and I hope you continue to be supported. You’ll get through this. Sending lots of love. Take care, Lisa xxx

      £20.00

    • Amie Dutt

      Amie Dutt

      Dec 1, 2019

      Wishing you all the best Erin x

      £5.00

    • Clive Dorey

      Clive Dorey

      Nov 29, 2019

      I’m an 83 year old widower and hope my paltry £10 will help a little .Issac is very lucky to have such a beautiful and extremely courageous woman as his wife - but I’m sure he knows that anyway ❣️

      £10.00

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    Erin Meegan

    Erin Meegan

    UK

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