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Christine Jenkins raised £27,607.52 from 918 supporters

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Closed 30/11/2019

6%
£27,607
raised of £400,000 target by 918 supporters

    Weʼve raised £27,607 to fund essential medicine, life saving treatment and all that’s involved during and after for our beautiful 7 year old to live her life

    Crawley, UK
    Funded on Saturday, 30th November 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

    Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

    Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

    Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America.

    Please can you help us?

    Can you do a fundraising event or simply donate? Whether you want to donate to the site or directly to us if up to you, we will be setting up an account solely for Ebonie where all monies will be deposited.

    If you want to donate directly to us please contact me for account details.

    Please can you atleast share this page so that she gets the chance to access this medicine as well as get the treatment she needs to live!

    UPDATE:

    In the last couple of weeks, ebonie has been accepted onto a trial at Great Ormond Street Hospital..she has had many tests and treatments/procedures for this, which have made her quite poorly at times..her disease came back also but again has now been cleared with intense spinal chemo. All being well she will be admitted in september to participate in the trial. Its very new and we‘re hoping and praying that it works... We have extended the time frame for fundraising and will continue to raise funds for ebonie.. we know that the medication Dasatinib is not funded for her and will know when/if she needs this in october/november...

    thank you for your continued support ❤️

    Updates

    9

    • Christine Jenkins1 year ago
      Christine Jenkins

      Christine Jenkins

      1 year ago

      Our beautiful girl gained her wings on Tuesday morning💔 she fought so hard like the warrior she was.. were devastated.. we’re making arrangements at present.. thank you for all of the love and support ❤️

      Update from the Page owner

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    • Christine Jenkins1 year ago
      Christine Jenkins

      Christine Jenkins

      1 year ago

      It’s been a difficult few months. After the CART therapy at GOS hospital in October..Ebonie relapsed in her CNS before Christmas. We were told she had 8 weeks left to live with treatment 😔 and placed on palliative care.. in the last 2 months her disease has been controlled and cleared again, but we’re still holding a ticking time bomb.. With funds raised now we are making memories and spending as much time together as a family. She is doing well for now but we don’t know what tomorrow brings.. Thank you for your continued support and love! ❤️

      Update from the Page owner

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    • Christine Jenkins2 years ago
      Christine Jenkins

      Christine Jenkins

      2 years ago

      Thank you for all the donations and support for Ebonie.. due to extensive chemo intrathecally Ebonie developed drug induced encephalopathy.. she lost the ability to swallow, talk, walk... she is slowly relearning these skills and is doing amazing but it’s a slow process.. we have now paid for a cycle of the Dasatinib medicine which will hopefully keep any CNS disease at bay and enable her to get the great Ormond street hosp for CART therapy.. without the support of justgiving and everyone who follows ebonies journey we wouldn’t be able to..❤️

      Update from the Page owner

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    2 years ago

    Christine Jenkins started crowdfunding

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    Page last updated on: 11/23/2019 00.58

    Supporters

    918

    • Eugen Kus

      Eugen Kus

      Nov 23, 2019

      Best wishes .

      £20.00

    • Anonymous

      Anonymous

      Nov 18, 2019

      Donation for advertising

    • Carley Mills

      Carley Mills

      Nov 12, 2019

      £10.00

    • Friends & Family

      Friends & Family

      Sep 26, 2019

      £103.17

    • Pete Davie

      Pete Davie

      Sep 13, 2019

      Sending love to you all. Thanks to Keith and Linda for the use of your caravan, love Pete, Sue, Phil, Jen & Jess xx

      £100.00

    • Jen Headey

      Jen Headey

      Sep 11, 2019

      £100.00

    • tony leyton

      tony leyton

      Aug 25, 2019

      £20.00

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    About Crowdfunding
    About the fundraiser
    Christine Jenkins

    Christine Jenkins

    Crawley, UK

    We raising money for life saving treatment for our daughter Ebonie who has fought an aggressive leukaemia for over 2.5 years, undergone bone marrow transplant and fights every day.. She deserves a life and to be able to live like any other 7 year old..

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