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£25,145raised of £400,000 target by 807 supporters

Weʼre raising £400,000 to fund essential medicine, life saving treatment and all that’s involved during and after for our beautiful 7 year old to live her life

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America.

Please can you help us?

Can you do a fundraising event or simply donate? Whether you want to donate to the site or directly to us if up to you, we will be setting up an account solely for Ebonie where all monies will be deposited.

If you want to donate directly to us please contact me for account details.

Please can you atleast share this page so that she gets the chance to access this medicine as well as get the treatment she needs to live!

UPDATE:

In the last couple of weeks, ebonie has been accepted onto a trial at Great Ormond Street Hospital..she has had many tests and treatments/procedures for this, which have made her quite poorly at times..her disease came back also but again has now been cleared with intense spinal chemo. All being well she will be admitted in september to participate in the trial. Its very new and we‘re hoping and praying that it works... We have extended the time frame for fundraising and will continue to raise funds for ebonie.. we know that the medication Dasatinib is not funded for her and will know when/if she needs this in october/november...

thank you for your continued support ❤️

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Updates

7

  • Christine Jenkins3 months ago
    Christine Jenkins

    Christine Jenkins

    3 months ago

    Thank you for all the donations and support for Ebonie.. due to extensive chemo intrathecally Ebonie developed drug induced encephalopathy.. she lost the ability to swallow, talk, walk... she is slowly relearning these skills and is doing amazing but it’s a slow process.. we have now paid for a cycle of the Dasatinib medicine which will hopefully keep any CNS disease at bay and enable her to get the great Ormond street hosp for CART therapy.. without the support of justgiving and everyone who follows ebonies journey we wouldn’t be able to..❤️

    Update from the Page owner

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  • Christine Jenkins4 months ago
    Christine Jenkins

    Christine Jenkins

    4 months ago

    Update from the Page owner

    Share this update to help us raise more

  • Christine Jenkins4 months ago
    Christine Jenkins

    Christine Jenkins

    4 months ago

    Ebonie has been accepted at great Ormond street hospital London for a trial..it’s new and scary but it’s what she needs to hopefully kill this horrible disease... having had lots of tests, treatments and procedures in the past weeks, plus a return of the disease in the CNS and feeling really quite poorly...we are now trying to keep her well for the next couple of weeks before being admitted.. she continues to be strong and as happy as can be!! ❤️

    Share this update to help us raise more

7 months ago

Christine Jenkins started crowdfunding

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Page last updated on: 12/9/2018 10:48 PM

Supporters

807

  • Anonymous

    Anonymous

    Dec 9, 2018

    Merry Christmas Ebonie and Family. So lovely to see you have celebrated together. All the best x

    £10.00

  • Matt Love

    Matt Love

    Dec 6, 2018

    Donation for advertising Guitar In Your Home :-)

    £5.00

  • Ian baldwin

    Ian baldwin

    Dec 1, 2018

    Such a brave little girl big love to you all ❤️

    £20.00

  • Roxanne Carpenter

    Roxanne Carpenter

    Nov 21, 2018

    £5.00

  • Ross L

    Ross L

    Nov 13, 2018

    I saw the poster requesting help in raising money for Ebonie in Timpsons in Dorking. I hope this donation helps Ebonie and her treatment is successful. Prayers and thoughts with you all.

    £100.00

  • Anonymous

    Anonymous

    Nov 12, 2018

    I hope that things work out for you all.

  • James and Tara Parker

    James and Tara Parker

    Nov 12, 2018

    Keep battling and smiling Ebonie!

    £20.00

Christine Jenkins

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About the fundraiser
Christine Jenkins

Christine Jenkins

Crawley, UK

We raising money for life saving treatment for our daughter Ebonie who has fought an aggressive leukaemia for over 2.5 years, undergone bone marrow transplant and fights every day.. She deserves a life and to be able to live like any other 7 year old..

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