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£20,263raised of £400,000 target by 719 supporters

Weʼre raising £400,000 to fund essential medicine and life saving treatment for our beautiful 7 year old

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America.

Please can you help us?

Can you do a fundraising event or simply donate? Whether you want to donate to the site or directly to us if up to you, we will be setting up an account solely for Ebonie where all monies will be deposited.

If you want to donate directly to us please contact me for account details.

Please can you atleast share this page so that she gets the chance to access this medicine as well as get the treatment she needs to live!

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Updates

4

  • Christine Jenkins1 month ago
    Christine Jenkins

    Christine Jenkins

    1 month ago

    Firstly a massive thank you to everyone who has donated towards treatment for Ebonie.. we are so thankful. She has almost been accepted into a trial for CART therapy at Great Ormond Street hospital in London, we will find out definitely in the next 2 weeks. Due to the funds not being readily available for America and learning that the trials available are in fact very similar, and time is of the essence, we will try this.. We are hoping that this trial will be good for Ebonie and do the job it’s supposed to🤞🏻 For now we will enjoy being home

    Update from the Page owner

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  • Christine Jenkins2 months ago
    Christine Jenkins

    Christine Jenkins

    2 months ago

    Another lumbar puncture today and results from last week are good..the treatment is working..helping get Ebonie back into remission (hopefully) ready to go to car therapy.. the paperwork is being sent to the US hospitals offering the best treatment and now it will be a wait for cost and eligibility.. ebonies getting quite a lot of pain in her legs due to the chemotherapy and steriods.. next week her bone marrow will be tested to see how it’s responded to the treatment so far..

    Update from the Page owner

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  • Christine Jenkins2 months ago
    Christine Jenkins

    Christine Jenkins

    2 months ago
    Update from the Page owner

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3 months ago

Christine Jenkins started crowdfunding

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Page last updated on: 8/16/2018 9:08 AM

Supporters

719

  • Anonymous

    Anonymous

    Aug 16, 2018

    Lots of luck and strength to all your beautiful family.

    £10.00

  • Interpet Ltd

    Interpet Ltd

    Aug 14, 2018

    From the donation box we set up at Interpet Dorking xxxxx

    £236.00

  • Julia Szczotok

    Julia Szczotok

    Aug 14, 2018

    I saw this around pound hill and wanted to attend the fundraiser at the school but couldnt make it due to commitments. All fingers crossed you raise the money.

    £10.00

  • Anonymous

    Anonymous

    Aug 14, 2018

    Good luck little one.

    £5.00

  • Anonymous

    Anonymous

    Aug 13, 2018

    5% of the total - keep on going!

    £10.00

  • Adina Lindsay

    Adina Lindsay

    Aug 9, 2018

    From all the staff and Police officers from the MET in Sidcup. We hope this helps you and your beautiful little girl. All the very best! xx

    £400.00

  • Janet Flanagan

    Janet Flanagan

    Aug 9, 2018

    £20.00

Christine Jenkins

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About the fundraiser
Christine Jenkins

Christine Jenkins

Crawley, UK

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