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Emily Parsons

Emily Parsons is crowdfunding

133%
£66,590
raised of £50,000 target by 2281 supporters

Weʼre raising £50,000 to fund research into malignant and currently incurable spinal cord tumours

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Just after my 22nd birthday, I was diagnosed with a rare, highly aggressive, malignant and currently incurable, spinal cord tumour (Diffuse Midline Glioma, H3 K27M Mutation). Within just 5 weeks following diagnosis, I was given the prognosis that I have limited time to live.

There are less than 100 people diagnosed with this type of tumour in the UK each year, all of them will be between the ages of 3 to 25 years old and sadly all of them will die. The tumour grows rapidly within the Central Nervous System and has a devastating impact either on the spinal cord or the brain.

There have been no advances in treatment for this type of tumour for over 40 years. This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day. In view of the rarity of the disease, there is limited information available which myself and my family have found difficult.

With the help of those around me, I have decided to set up this page to raise money to support a research project currently taking place within the Cancer Research UK’s (CRUK) Children’s Brain Tumour Centre of Excellence at Addenbrookes Hospital in Cambridge. This innovative research project has been jointly funded by CRUK, Great Ormond Street Hospital and Brain Research UK. The research is specifically studying tumours in the Central Nervous System in children and young adults with this rare mutation to identify targeted treatment options for the future. This particular research project is close to my heart because of its relevance to my specific type of tumour, it’s based at Addenbrookes where I have received treatment, and also with my love of children and my future aspirations to have been a primary school teacher it feels like a perfect fit.

In addition, I would like to share with you that whilst I knew there was something wrong, it took multiple GP appointments across several months before I was finally referred to a specialist. I know that for my cancer an early diagnosis would have been highly unlikely to make a difference to my prognosis, but for other cancers it could. We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you.

I would really appreciate it if you could show your support by donating to and sharing this page.

Thank you,

Emily x

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Updates

17

  • Emily Parsons3 days ago
    Emily Parsons

    Emily Parsons

    3 days ago

    We have recently transferred a further £5,636.72 which is the sum raised since Emily sadly passed away, this brings the total donations raised to date (less just giving costs) to £64,023 which is amazing! We are planning a charity fundraising event on Saturday 30th October which will be the 1 year anniversary of Emily's devastating prognosis. The event will be in our local village with food, bar, raffle and dancing. We hope many of you will be able to join us. Details to follow. Thank you for your continued love, kindness and support X

    Update from the Page owner

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  • Emily Parsons3 months ago
    Emily Parsons

    Emily Parsons

    3 months ago

    It is with deepest of sadness to say that our darling Emily passed away peacefully and surrounded by love on Thursday 6th May. Our hearts are truly broken but we have been inspired by Emily's courage, grace and bravery. She will be in our hearts forever. Emily's wish was for us to continue raising funds in her memory and the page will remain open for donations. Thank you for all your support it meant the world to Emily and to us.

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  • Emily Parsons5 months ago
    Emily Parsons

    Emily Parsons

    5 months ago

    Below is the receipt for an additional £500 donation to the research project. Thank you x

    Update from the Page owner

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9 months ago

Emily Parsons started crowdfunding

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Page last updated on: 8/3/2021 14.42

Supporters

2281

  • Jo and Paul

    Jo and Paul

    Aug 3, 2021

    Thinking of you all xx

    £100.00

  • Nina and Gordon Worrall

    Nina and Gordon Worrall

    Jul 21, 2021

    Lisa, I am so sorry to hear such sad, sad news of Emily, our thoughts are with you. Nina and Gordon Worrall xx

    £20.00

  • Tommy H

    Tommy H

    Jul 12, 2021

    £20.00

  • Pam Durrant

    Pam Durrant

    Jun 19, 2021

    In memory of a very brave and beautiful girl. Hope her legacy will help others.

  • Nancy and George

    Nancy and George

    Jun 7, 2021

    £10.00

  • Anonymous

    Anonymous

    Jun 4, 2021

    In memory of your bravery.

  • Jules

    Jules

    Jun 1, 2021

    For Emily rest well beautiful, you are and will be so sadly missed by so many people xx

    £100.00

Emily Parsons

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About the fundraiser
Emily Parsons

Emily Parsons

Cambridge

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