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Emily Parsons raised £102,050 from 2465 supporters

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Closed 10/12/2021

0%
£102,050
raised of £100,000 target by 2465 supporters

    Weʼve raised £102,050 to fund research into malignant and currently incurable spinal cord tumours

    Cambridge
    Funded on Friday, 10th December 2021

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    Story

    Just after my 22nd birthday, I was diagnosed with a rare, highly aggressive, malignant and currently incurable, spinal cord tumour (Diffuse Midline Glioma, H3 K27M Mutation). Within just 5 weeks following diagnosis, I was given the prognosis that I have limited time to live.

    There are less than 100 people diagnosed with this type of tumour in the UK each year, all of them will be between the ages of 3 to 25 years old and sadly all of them will die. The tumour grows rapidly within the Central Nervous System and has a devastating impact either on the spinal cord or the brain.

    There have been no advances in treatment for this type of tumour for over 40 years. This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day. In view of the rarity of the disease, there is limited information available which myself and my family have found difficult.

    With the help of those around me, I have decided to set up this page to raise money to support a research project currently taking place within the Cancer Research UK’s (CRUK) Children’s Brain Tumour Centre of Excellence at Addenbrookes Hospital in Cambridge. This innovative research project has been jointly funded by CRUK, Great Ormond Street Hospital and Brain Research UK. The research is specifically studying tumours in the Central Nervous System in children and young adults with this rare mutation to identify targeted treatment options for the future. This particular research project is close to my heart because of its relevance to my specific type of tumour, it’s based at Addenbrookes where I have received treatment, and also with my love of children and my future aspirations to have been a primary school teacher it feels like a perfect fit.

    In addition, I would like to share with you that whilst I knew there was something wrong, it took multiple GP appointments across several months before I was finally referred to a specialist. I know that for my cancer an early diagnosis would have been highly unlikely to make a difference to my prognosis, but for other cancers it could. We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you.

    I would really appreciate it if you could show your support by donating to and sharing this page.

    Thank you,

    Emily x

    Updates

    24

    • Emily Parsons7 months ago
      Emily Parsons

      Emily Parsons

      7 months ago

      We are delighted to post the official confirmation that, after just giving deduction of fees, funds raised for Emily's research project were £100,000 in total. Emily would have been so proud and humbled by everyone's love generosity and support. As a family we will continue to get updates from the research team on their progress in finding treatments and cures for this devastating disease. We miss Emily every moment and wish she was here to see this update and we continue to be so grateful for all your love and support for us. Thank you x

      Update from the Page owner

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    • Emily Parsons8 months ago
      Emily Parsons

      Emily Parsons

      8 months ago

      On 2nd December, we had the pleasure of meeting the team at the Jeffrey Chean Biomedical Centre on the Addenbrookes hospital site. Manav Pathania, Research Lead together with his team and Professor Richard Gilbertson, Director of Cancer Research UK hosted our visit and gave us fantastic insight into the incredible work they are doing to find treatments and cures for Emily's rare cancer. Research is all we have and we are making a difference with your incredible support and generosity.

      Update from the Page owner

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    • Emily Parsons8 months ago
      Emily Parsons

      Emily Parsons

      8 months ago
      Update from the Page owner

      We are beyond proud of Emily for reaching 10 times that she ever thought possible. Research is all we have in the fight against this devastating cancer and through your generosity and support we truly will make a difference. Our heartfelt thanks and love to you all x

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    2 years ago

    Emily Parsons started crowdfunding

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    Page last updated on: 1/19/2022 19.50

    Supporters

    2465

    • Ellie Burchell

      Ellie Burchell

      Dec 10, 2021

      I’m forever so proud of you Emily, I miss you so so much, love you always💖

      £50.00

    • Lisa, Paul & Ben

      Lisa, Paul & Ben

      Dec 10, 2021

      Our darling Emily, we are beyond proud of everything you have achieved, we miss you every day. You are in our hearts every moment and we will love you forever. 💓🌻💓

      £750.00

    • James Smart

      James Smart

      Dec 10, 2021

      Love and miss you lots Ems. So proud of you.

      £200.00

    • Anonymous

      Anonymous

      Dec 10, 2021

      £10.00

    • Anonymous

      Anonymous

      Dec 9, 2021

    • Anonymous

      Anonymous

      Dec 9, 2021

      So proud of you Emily and your Mum all my love J x

      £1,000.00

    • Ruby, Jake, Eva, Karl & Sue

      Ruby, Jake, Eva, Karl & Sue

      Dec 9, 2021

      How amazing! We will always be in awe of you Emily xx

      £20.00

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    About the fundraiser
    Emily Parsons

    Emily Parsons

    Cambridge

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