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Emily Parsons

Emily Parsons is crowdfunding

raised of £100,000 target by 2375 supporters

Weʼre raising £100,000 to fund research into malignant and currently incurable spinal cord tumours

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Just after my 22nd birthday, I was diagnosed with a rare, highly aggressive, malignant and currently incurable, spinal cord tumour (Diffuse Midline Glioma, H3 K27M Mutation). Within just 5 weeks following diagnosis, I was given the prognosis that I have limited time to live.

There are less than 100 people diagnosed with this type of tumour in the UK each year, all of them will be between the ages of 3 to 25 years old and sadly all of them will die. The tumour grows rapidly within the Central Nervous System and has a devastating impact either on the spinal cord or the brain.

There have been no advances in treatment for this type of tumour for over 40 years. This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day. In view of the rarity of the disease, there is limited information available which myself and my family have found difficult.

With the help of those around me, I have decided to set up this page to raise money to support a research project currently taking place within the Cancer Research UK’s (CRUK) Children’s Brain Tumour Centre of Excellence at Addenbrookes Hospital in Cambridge. This innovative research project has been jointly funded by CRUK, Great Ormond Street Hospital and Brain Research UK. The research is specifically studying tumours in the Central Nervous System in children and young adults with this rare mutation to identify targeted treatment options for the future. This particular research project is close to my heart because of its relevance to my specific type of tumour, it’s based at Addenbrookes where I have received treatment, and also with my love of children and my future aspirations to have been a primary school teacher it feels like a perfect fit.

In addition, I would like to share with you that whilst I knew there was something wrong, it took multiple GP appointments across several months before I was finally referred to a specialist. I know that for my cancer an early diagnosis would have been highly unlikely to make a difference to my prognosis, but for other cancers it could. We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you.

I would really appreciate it if you could show your support by donating to and sharing this page.

Thank you,

Emily x

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  • Emily Parsons1 month ago
    Emily Parsons

    Emily Parsons

    1 month ago

    In view of the incredible support we have received in preparation for our fundraising month in October with a raffle, auction and culminating in an evening being held in Emily's memory and knowing how ambitious Emily wanted us to be in raising funds we have decided to increase the target to see if we can get as near as we can to £100,000. As ever thank you to everyone for their amazing support. x

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  • Emily Parsons3 months ago
    Emily Parsons

    Emily Parsons

    3 months ago

    We have recently transferred a further £5,636.72 which is the sum raised since Emily sadly passed away, this brings the total donations raised to date (less just giving costs) to £64,023 which is amazing! We are planning a charity fundraising event on Saturday 30th October which will be the 1 year anniversary of Emily's devastating prognosis. The event will be in our local village with food, bar, raffle and dancing. We hope many of you will be able to join us. Details to follow. Thank you for your continued love, kindness and support X

    Update from the Page owner

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  • Emily Parsons6 months ago
    Emily Parsons

    Emily Parsons

    6 months ago

    It is with deepest of sadness to say that our darling Emily passed away peacefully and surrounded by love on Thursday 6th May. Our hearts are truly broken but we have been inspired by Emily's courage, grace and bravery. She will be in our hearts forever. Emily's wish was for us to continue raising funds in her memory and the page will remain open for donations. Thank you for all your support it meant the world to Emily and to us.

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1 year ago

Emily Parsons started crowdfunding

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Page last updated on: 10/22/2021 15.58



  • Laura Winter

    Laura Winter

    Oct 22, 2021

    Paul and Lisa and family, I am so sorry to hear Emily's story and cannot ever imagine the heartache you live with. This is a great idea to support others with this cancer. Best wishes, Laura x


  • Dani Wykes

    Dani Wykes

    Oct 17, 2021

    Well done for running the Cambridge Half, Team Emily you are amazing. 🌻❤️


  • Chels Parker

    Chels Parker

    Oct 15, 2021

    Best of luck smashing your target, for a very worthy cause! ❤


  • grace


    Oct 11, 2021

    Hope the fundraiser goes well 🌻💛


  • Anonymous


    Oct 8, 2021


  • Dave, Karen, Ellie and Joely

    Dave, Karen, Ellie and Joely

    Oct 8, 2021


  • Ian Shipley

    Ian Shipley

    Oct 6, 2021

    We need to won the battle against these cancers.


Emily Parsons

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

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Emily Parsons

Emily Parsons


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