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Emily Parsons

Emily Parsons is crowdfunding

110%
£55,039
raised of £50,000 target by 1871 supporters

Weʼre raising £50,000 to fund research into malignant and currently incurable spinal cord tumours

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Just after my 22nd birthday, I was diagnosed with a rare, highly aggressive, malignant and currently incurable, spinal cord tumour (Diffuse Midline Glioma, H3 K27M Mutation). Within just 5 weeks following diagnosis, I was given the prognosis that I have limited time to live.

There are less than 100 people diagnosed with this type of tumour in the UK each year, all of them will be between the ages of 3 to 25 years old and sadly all of them will die. The tumour grows rapidly within the Central Nervous System and has a devastating impact either on the spinal cord or the brain.

There have been no advances in treatment for this type of tumour for over 40 years. This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day. In view of the rarity of the disease, there is limited information available which myself and my family have found difficult.

With the help of those around me, I have decided to set up this page to raise money to support a research project currently taking place within the Cancer Research UK’s (CRUK) Children’s Brain Tumour Centre of Excellence at Addenbrookes Hospital in Cambridge. This innovative research project has been jointly funded by CRUK, Great Ormond Street Hospital and Brain Research UK. The research is specifically studying tumours in the Central Nervous System in children and young adults with this rare mutation to identify targeted treatment options for the future. This particular research project is close to my heart because of its relevance to my specific type of tumour, it’s based at Addenbrookes where I have received treatment, and also with my love of children and my future aspirations to have been a primary school teacher it feels like a perfect fit.

In addition, I would like to share with you that whilst I knew there was something wrong, it took multiple GP appointments across several months before I was finally referred to a specialist. I know that for my cancer an early diagnosis would have been highly unlikely to make a difference to my prognosis, but for other cancers it could. We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you.

I would really appreciate it if you could show your support by donating to and sharing this page.

Thank you,

Emily x

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Updates

11

  • Emily Parsons5 days ago
    Emily Parsons

    Emily Parsons

    5 days ago

    Yesterday we joined a virtual meeting with CRUK's Children Brain Tumour Centre of Excellence, my oncologist and the University of Cambridge to present the first £52,086 of your kind donations, this is the total fund value to date less Just Giving admin fees. This will pay for a senior scientist to join the team for a whole year to work on finding treatments and hopefully a cure for this rare type of cancer. We are so grateful for your support in making this happen. We will continue raising funds and making donations to this project.

    Update from the Page owner

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  • Emily Parsons1 month ago
    Emily Parsons

    Emily Parsons

    1 month ago
    Update from the Page owner

    I am totally in awe of peoples kindness and generosity in helping me raise £50,000 which is five times my original target. It gives me a huge amount of comfort to know that this money will make a real difference in this much needed field of research and help other young people and their loved ones in the future. I can never express how grateful I am for all your support and your kind words. Wishing you all a very Happy Christmas & New Year. Love Emily x

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  • Emily Parsons1 month ago
    Emily Parsons

    Emily Parsons

    1 month ago
    Update from the Page owner

    We have just £1,738 to go to reach the target, it would be so amazing to hit this for Christmas. We are so grateful for everyone's support and anything you can do to donate or share would be fantastic. Thankyou everyone. Emily x

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2 months ago

Emily Parsons started crowdfunding

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Page last updated on: 1/27/2021 21.24

Supporters

1871

  • Anonymous

    Anonymous

    Jan 27, 2021

    £10.00

  • Millie

    Millie

    Jan 26, 2021

    You are an inspiration x

    £15.00

  • Anonymous

    Anonymous

    Jan 24, 2021

  • Pippa

    Pippa

    Jan 23, 2021

    To round it up to the next £1000. Love and hugs.

    £24.00

  • Olivia Fuller

    Olivia Fuller

    Jan 23, 2021

    Sending you all my love 💜xx

  • Anonymous

    Anonymous

    Jan 23, 2021

    Sending you positive thoughts, you're an amazing young lady x

    £5.00

  • Anonymous

    Anonymous

    Jan 23, 2021

    £50.00

Emily Parsons

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About the fundraiser
Emily Parsons

Emily Parsons

Cambridge

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