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Emily Parsons

Emily Parsons is crowdfunding

121%
£60,640
raised of £50,000 target by 2106 supporters

Weʼre raising £50,000 to fund research into malignant and currently incurable spinal cord tumours

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Just after my 22nd birthday, I was diagnosed with a rare, highly aggressive, malignant and currently incurable, spinal cord tumour (Diffuse Midline Glioma, H3 K27M Mutation). Within just 5 weeks following diagnosis, I was given the prognosis that I have limited time to live.

There are less than 100 people diagnosed with this type of tumour in the UK each year, all of them will be between the ages of 3 to 25 years old and sadly all of them will die. The tumour grows rapidly within the Central Nervous System and has a devastating impact either on the spinal cord or the brain.

There have been no advances in treatment for this type of tumour for over 40 years. This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day. In view of the rarity of the disease, there is limited information available which myself and my family have found difficult.

With the help of those around me, I have decided to set up this page to raise money to support a research project currently taking place within the Cancer Research UK’s (CRUK) Children’s Brain Tumour Centre of Excellence at Addenbrookes Hospital in Cambridge. This innovative research project has been jointly funded by CRUK, Great Ormond Street Hospital and Brain Research UK. The research is specifically studying tumours in the Central Nervous System in children and young adults with this rare mutation to identify targeted treatment options for the future. This particular research project is close to my heart because of its relevance to my specific type of tumour, it’s based at Addenbrookes where I have received treatment, and also with my love of children and my future aspirations to have been a primary school teacher it feels like a perfect fit.

In addition, I would like to share with you that whilst I knew there was something wrong, it took multiple GP appointments across several months before I was finally referred to a specialist. I know that for my cancer an early diagnosis would have been highly unlikely to make a difference to my prognosis, but for other cancers it could. We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you.

I would really appreciate it if you could show your support by donating to and sharing this page.

Thank you,

Emily x

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Updates

15

  • Emily Parsons1 month ago
    Emily Parsons

    Emily Parsons

    1 month ago

    Below is the receipt for an additional £500 donation to the research project. Thank you x

    Update from the Page owner

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  • Emily Parsons1 month ago
    Emily Parsons

    Emily Parsons

    1 month ago

    Thank you for your continued support for my page, it is so amazing that we are now over £60,000. We have recently transferred a further £5,700 to the research project bringing our total donations now to £57,786 which is the total fundraising less just giving costs. Thank you x

    Update from the Page owner

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  • Emily Parsons2 months ago
    Emily Parsons

    Emily Parsons

    2 months ago

    We were so moved by the comments on Emily's fundraising page, we captured every single comment and created a wordcloud. The more times a particular word is used the bigger the word appears and you will see from the picture below the amazing words which all of you have donated have said about Emily. Our friend Jay Lewis then created a wonderful glass heart which now takes pride of place in our hallway. We will treasure this forever and be grateful to every single one of you who donated. Thank you x

    Update from the Page owner

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5 months ago

Emily Parsons started crowdfunding

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Page last updated on: 3/26/2021 03.32

Supporters

2106

  • Anonymous

    Anonymous

    Mar 26, 2021

    £20.00

  • Mogrify Ltd.

    Mogrify Ltd.

    Mar 19, 2021

    We hope that this small gesture can help in these difficult times.

  • Z Yang

    Z Yang

    Mar 18, 2021

  • Anonymous

    Anonymous

    Mar 18, 2021

    £20.00

  • Cora and Peter

    Cora and Peter

    Mar 15, 2021

    Thinking of you, Emily, and sending our love to you and all the family.

    £100.00

  • Thea

    Thea

    Mar 15, 2021

    ❤️❤️❤️

  • Ade Long

    Ade Long

    Mar 13, 2021

    Your spirit and your courage is truly inspirational and humbling. I am sure that others will benefit from your work. My thoughts are with you and your lovely family

    £40.00

Emily Parsons

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About the fundraiser
Emily Parsons

Emily Parsons

Cambridge

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