Some of you may know that my boyfriend John has cystic fibrosis, but to the people who didn't know and don't know what cystic fibrosis is, it is a genetic condition where the lungs and digestive system get clogged with thick mucus, making it harder to breathe. Currently, there is no cure.
John takes 40+ tablets a day, has to take his inhalers, his nebulisers, and do his daily physiotherapy to open his lungs up to allow some air into them. He has regular appointments at the doctors, and the hospital has become to be his second home. John has some other underlying conditions he has to deal with as well as his CF. He also has a specialised form of diabetes, which he has to inject himself with insulin and be put on a high calorie diet to prevent his sugar levels from dropping.
Although John does his normal physiotherapy now, I researched other ways he could do his physio and incorporate it into what he does currently, and I came upon this vest. However, it is not available on the NHS and it has quite a price tag. The vest has air going in and out very fast so that it lightly vibrates the lungs to break up the mucus inside and make it much easier to cough up and remove from the body, therefore helping John breathe easier. I've found that pretty much everyone that has this vest feels a lot better using it with their normal physio routine. It's helped improve lung function and even increase it, and I believe this form of therapy will benefit John.
I can't do much for John besides go to every doctor and hospital appointment, annoy him into doing his physio before he goes to bed (I have to tickle his back so he does), making sure he takes every last tablet and to always be there for him. Cystic fibrosis has become very close to my heart and I want to do everything I can for John so he can feel that little more comfortable.
Anything from 2p to £2 will make a massive difference and will mean the world to me. This is a massive long shot but it's worth a try!
Emily Salmon8 months ago
We've been in contact with a man from HillRom (where we'll get the vest from) and in a few weeks either he'll come down or he'll send a unit down to show us the vest, how to use it/set it up and leave it with us for a 6 week trial to see how John will get on with it. We've got the go ahead from Johns physio, and she's going to help arrange the trial. We've also been told that we can get a cheaper model of the vest, which is even better as it means now that we are almost halfway there to reaching our target! Thank you to everyone thats donated!
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Dec 3, 2016
Dec 3, 2016
Dec 2, 2016
Lots of love Gary & Sally xx
Nov 7, 2016
Nov 6, 2016
Nov 3, 2016
Hope this helps you. Love cousin Dawn.x
Nov 3, 2016
Hope this will help you JJ. Love Aunt M.x
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