I've set up this page to help my daughter Emily who has Rett syndrome.

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn. Genetic but largely not inherited, Rett syndrome is usually caused by a fault on a gene called MECP2 which is found on the X chromosome. People with Rett syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.

As Emily grows up we will need more equipment, seats for the house, car etc. Sensory equipment. Communication equipment and anything else that crops up. To help I'm planning on doing some sponsored events with the aim of raising some money to help Emily. Some of the donations will also go to the Rett charities to help with their work in trying to find a cure.

The first of these events will take place in a few weeks time. I'm going to cycle the Fife costal path from Broughty Ferry, Dundee, to Edinburgh. The path is a walking path but most of it can be done by bike. A few parts will involve carrying the bike or deviating slieghtly onto road. My aim is to keep as much off road as possible to make it more of a challenge. Distance will be approx 100 miles. Possible more as i'm not racing down and may make some siteseeing detours...plus am expecting to take some wrong turns here and there and will have to backtrack some. I'll probably do it over two days as like i said its not a race.

If you would like to help Emily by sponsoring me then any donataion, no matter how small, will be hugely appreciated.

This page will be updated with other events as they happen. Please share it if you can. Also if anyone else would like to do any events to help Emily then please contact me.

Thanks in advance

Robbie