I've raised £700 to Provide Emily with a Potential Life Saving Device. A Brio System Wrist Alarm. Detecting various siezure types at night. Even the silent 1s

Organised by Dee Harvey
Donations cannot currently be made to this page
Newcastle upon Tyne, UK ·Health and medical

Story

Hello to Anyone and Everyone who has took the time to read this so far. My daughter was born with an undiagnosed duodenal atresia and had multiple strokes d3 of life. 15% dehydrated she was readmitted to SCBU RVI Hospital. Fighting for her life. She has an acquired brain injury because of the undiagnosed duodenal atresia. On top of various other medical issues as a result of her stroke is her epilepsy. And hers is nocturnal. Shes been coma induced and Ventilated on every siezure. Emergency medication doesn't work. If i missed her past siezures she would not be here today. She has had increased siezure activity and had her medication increased in the past couple weeks.

The link below is a video giving you an idea of how much this would help Emily.

https://youtu.be/M36BgBAAjn0

The Brio Wrist Monitor detects all night activity. Sometimes before a siezure happens. Its not funded by the NHS and epilepsy lifestyle who has helped us in the past, has closed their waiting list for now. So any extra money raised will be donated to them.

About fundraiser

Dee Harvey
Organiser

Donation summary

Total
£740.00