Last September my fabulous hubby and Noah and Clem’s Dad was diagnosed with stage 4 lung cancer, at 41, it has a very poor prognosis with only 5% of people surviving 5 years or more. Since diagnosis he has undergone chemotherapy, radiotherapy and immunotherapy, back in May Jon’s scans showed progression which we were highly encouraged was inflammation or pseudoprogression. After a ridiculous 9 week wait for a biopsy and three more scans, which have all shown progression, we now know the progression to be real and due to a tumour pressing on Jon’s jugular vein he now has a blood clot and needs to start emergency Chemo. (We had hoped to make it to the United States but this option has been taken away from is.) This chemo has a 20/25% chance of holding the cancer at bay buying us a bit more time and less than 6% chance of shrinking the tumours. The NHS won‘t fund anymore immunotherapy as it has now had to stop due to progression but there is a new immunotherapy that has shown really promising results with squamous cell cancer like Jon has and we really hopes to appeal to the drug company and try to get it on compassionate grounds but its highly unlikely this will happen. We can co-pay with the NHS but it costs £4600 a treatment we just don‘t have the funds for this. We are going to keep bugging Sanofi, the company that own the drug but any help would be amazing! We hate having to ask people but we just domt know what else to do. The prospect of Noah and Clem going through more tragedy after a difficult few years breaks our hearts, Jon is a fighter and has no intention of giving up anytime soon but without better treatments our options are running out.

On Monday (21/08/23) Jon goes into hospital to have a stent fitted in the hopes that this will prevent further life threatening blood clots forming and for his first dose of double chemo. The love and support we have felt over the last year has been amazing and filled our hearts with joy. Thank you all from the bottom of our hearts.