I am planning to provide practical help for this young lad such as pampers as he is incontinent, creams and baby oil to keep his skin moisturised, a specially adapted day bed which will allow him to be able to interact with the rest of the family during the day and be able to be out and about with the rest.
To have a harness made which will enable him a some respite from the muscle spasm which bends his body in such a way that is causes excruciating pain.
Provide liquid food supplements as he cannot chew as we do.
Provide funds for his monthly medical assessments.