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Eva Rose Trust Team raised £183 from 10 supporters

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Closed 24/06/2020

183%
£183
raised of £100 target by 10 supporters

    Weʼve raised £183 to support Eva Rose Trust.

    West Sussex
    Funded on Wednesday, 24th June 2020

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    Story

    **** UPDATE****

    From BM Weekend Organisers:

    Following the escalation of coronavirus, we have been taking advice from official bodies, while also working closely with other mass event organisers to understand the situation for the industry, our participants and supporters.

    It is with heavy hearts that we have to deliver the disappointing news that the Brighton Marathon Weekend has been postponed until Friday 18th September - Sunday 20th September 2020. (Brighton Marathon, BM10k and BM Ride taking place on Sunday 20th September.)

    ***********************************************************************

    We are so very grateful for everyone's efforts in sharing our JG page, our story and donating.

    We WILL be taking part in the event on the new date *20th September 2020* and continue to be very grateful if you could continue to support.

    Many thanks

    The Eva Rose Trust Team

    xxx

    *********************************************************************

    BM Ride 50K (31 Miles)- On Sunday 19th April 2020, Eva's Mummy, Daddy, Uncle, Pops and Grandad will be taking to their bikes to take part in the 50K ride around Brighton as part of their Marathon Weekend.

    We would like to dedicate each mile we do to a loved one who is no longer with us. If you would like to sponsor a mile in memory of someone close to you then please do get in touch. The 19th Mile will be in memory of Eva Rose.

    We hope that through our efforts, we can raise awareness of all the Eva Rose Trust stands for and raise a few more pennies.

    We would be so grateful if you could share our page with everyone you know.

    Thank you in advance for your continued support.

    Eva Rose Trust Team xxx

    About the Eva Rose Trust:

    Lou and Tom set up a trust in memory of their daughter, Eva Rose. Their twin girls, Eva Rose and Una Mae were born 12 weeks early at just 28 wks +1 gestation. Tragically, at just 4 1/2 weeks old , Eva developed NEC. After various medication and two surgical procedures, sadly there was little that could be done for Eva and she passed away on 19th March 2017.

    Our Mission:

    -To provide support to families who are currently experiencing life with a premature baby(ies) in Special Care and families who have experienced losing a baby(ies) due to prematurity and in some cases specifically Necrotising Enterocolitis (NEC).

    -To work with the NHS and NICU, SCBU and LNC units to ensure there is consistency in practice when diagnosing, treating and preventing NEC and to educate in areas of need.

    -To carry out and fund research into NEC, collaborating with other organisations and medical professionals in the aim of eradicating NEC.

    Through this, we will raise awareness of Prematurity, NEC and the reality of living through these experiences. We strive to make babyloss no longer a taboo.

    Our Vision: Research, Educate, Support

    Research:

    Fund research into NEC

    Utilise existing research to improve practice

    Collaborate with organisations to further the understanding of NEC

    Run surveys to improve the understanding of experiences, practice, and support available.

    Educate:

    Understand current practice across Hospital Trusts.

    Identify inconsistencies in diagnosis, treatment and outcomes.

    Identify level of support given to families throughout care.

    Identify information provided to families about NEC and timescale.

    Provide Education opportunities to NICU, SCBU and LNC units and all staff within.

    Support:

    Identify breadth of support needed.

    Tailor support to individual family needs.

    Provide families with children living with NEC with information and support.

    Provide families who have lost a child(ren) to NEC with support.

    Provide information about NEC to existing families on units prior to NEC.

    Thank you in advance, for your support.

    Updates

    3

    • Eva Rose Trust Team4 months ago
      Eva Rose Trust Team

      Eva Rose Trust Team

      4 months ago

      Information from the BM Marathon Organisers. Thank you so much for your continued support. We WILL still be taking part in September =) Love from The Eva Rose Trust Team xxx

      Update from the Page owner

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    • Eva Rose Trust Team4 months ago
      Eva Rose Trust Team

      Eva Rose Trust Team

      4 months ago

      The following miles have been sponsored in memory of loved ones: Mile 2. Tash Bruton Mile 19. Eva Rose Moss-Silverson Mile 26. Dexter Lindley Mile 27. Charlie Dumbrell Mile 28. Ezekiel Loftus, Jude Loftus & Jemima Loftus. Mile 29. Baby Smith/ Peanut Please let us know if you would like to sponsor a mile in memory of a loved one or if you have already donated and want to list your loved one against a mile. Much love & appreciation, The Eva Rose Team x

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    • Eva Rose Trust Team4 months ago
      Eva Rose Trust Team

      Eva Rose Trust Team

      4 months ago
      Update from the Page owner

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    4 months ago

    Eva Rose Trust Team started crowdfunding

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    Page last updated on: 4/22/2020 19.53

    Supporters

    10

    • Grant Ashworth

      Grant Ashworth

      Apr 22, 2020

      Thinking of you and the family Tom. Well done on your ride. Brilliant effort mate.

      £20.00

    • Leah Lindley

      Leah Lindley

      Mar 9, 2020

      Good luck to you all, love from The Lindley’s 🧡💙

      £20.00

    • The Goodwin Family

      The Goodwin Family

      Mar 8, 2020

      Good luck guys!From Jon, Siobhan, Kitty & Elsie ⭐️ Xx

      £10.00

    • Juliette Grevett

      Juliette Grevett

      Mar 6, 2020

      Good luck everyone!

      £20.00

    • Kailla and Matt

      Kailla and Matt

      Mar 5, 2020

      Good luck everyone! Fingers crossed for nice weather on the day😎Love from The Bointon’s ❤️❤️❤️

      £10.00

    • darren silverson

      darren silverson

      Mar 5, 2020

      £40.00

    • Anonymous

      Anonymous

      Mar 3, 2020

      Good luck and big hugs guys ❤

      £20.00

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    Eva Rose Trust Team

    Eva Rose Trust Team

    West Sussex

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