.Myself, husband Ian and a group of friends (Christy and Joe Walker, Alanna Gallacher, Alun Mcarthur, Michelle Lindridge and Dan Szczesnowski) are fundraising in memory of Eva Giles by competing in a Tough Mudder on 23rd September 2017.

Eva was a happy, healthy 4 year old girl who had just started school and loved life. In April 2016, Eva's parents noticed that her walking was wobbly, and she had problems hearing. After numerous GP appointments and trips to A&E, her parents heard four letters that would change their lives forever - D.I.P.G

Diffuse Intrinsic Pontine Glioma, or DIPG, for short, is an aggressive, incurable brain tumour that affects children aged 5-9 years old. 40 children are diagnosed every year in the UK - that's one child every 9 days. It is terminal on diagnosis, children are given an average of 9 months to live. It takes away their bodily functions such as walking, swallowing, and speech, until eventually they are no longer to breathe. Eva fought bravely for exactly 12 months, and lost her battle on 7th April 2017, aged just 5 years old.

This disease is categorised as rare, and receives almost 0% funding. In 2016/17 Cancer Research UK allocated 1.4% of their annual spend to pediatric cancers, and DIPG received nothing. There is NO CURE, and any treatments out there are self-funded by the devastated families desperately trying to save their children.

This money will go towards setting up a charity in Eva's memory, which will be dedicated towards raising awareness, and funding research into DIPG.

Here's a piece in the Daily Mirror that Was written to raise awareness of the disease. Eva's Mum and Dad - Emma and Dean contributed to it, as a warning it is very tough read and has some distressing images.

http://www.mirror.co.uk/news/uk-news/cancer-no-child-survives-parents-10907167?ICID=FB_mirror_main

Thank you so much for any donation.