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Clare Irvine raised £461 from 18 supporters.

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Closed 10/10/2017

115%
£461raised of £400 target by 18 supporters

    Weʼve raised £461 to setting up a charity in Eva's memory; Please read the story below which explains the why and where your donation will go. Thank you Clare x

    Location
    Kent uk
    Time left
    Funded on Tuesday, 10th October 2017

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    Story

    .Myself, husband Ian and a group of friends (Christy and Joe Walker, Alanna Gallacher, Alun Mcarthur, Michelle Lindridge and Dan Szczesnowski) are fundraising in memory of Eva Giles by competing in a Tough Mudder on 23rd September 2017.

    Eva was a happy, healthy 4 year old girl who had just started school and loved life. In April 2016, Eva's parents noticed that her walking was wobbly, and she had problems hearing. After numerous GP appointments and trips to A&E, her parents heard four letters that would change their lives forever - D.I.P.G

    Diffuse Intrinsic Pontine Glioma, or DIPG, for short, is an aggressive, incurable brain tumour that affects children aged 5-9 years old. 40 children are diagnosed every year in the UK - that's one child every 9 days. It is terminal on diagnosis, children are given an average of 9 months to live. It takes away their bodily functions such as walking, swallowing, and speech, until eventually they are no longer to breathe. Eva fought bravely for exactly 12 months, and lost her battle on 7th April 2017, aged just 5 years old.

    This disease is categorised as rare, and receives almost 0% funding. In 2016/17 Cancer Research UK allocated 1.4% of their annual spend to pediatric cancers, and DIPG received nothing. There is NO CURE, and any treatments out there are self-funded by the devastated families desperately trying to save their children.

    This money will go towards setting up a charity in Eva's memory, which will be dedicated towards raising awareness, and funding research into DIPG.

    Here's a piece in the Daily Mirror that Was written to raise awareness of the disease. Eva's Mum and Dad - Emma and Dean contributed to it, as a warning it is very tough read and has some distressing images.

    http://www.mirror.co.uk/news/uk-news/cancer-no-child-survives-parents-10907167?ICID=FB_mirror_main

    Thank you so much for any donation.

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    Clare Irvine

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      6 months ago

      Clare Irvine started crowdfunding

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      Supporters

      18

      • Claire Hudson

        Claire Hudson

        Sep 26, 2017

        Well done guys - an awesome achievement. Xx

        £30.00

      • Helen Whelan

        Helen Whelan

        Sep 23, 2017

        Good luck, rare diseases need people like you xx

        £10.00

      • Jo Hulett

        Jo Hulett

        Sep 22, 2017

        Well done to all of you xx🌈🦋

        £50.00

      • Natasha Pooley

        Natasha Pooley

        Sep 22, 2017

        💖xxx

        £10.00

      • Jessica Allen

        Jessica Allen

        Sep 22, 2017

        Having a child the same age who's just started school; reading this has really pulled on the heart strings. I couldn't imagine what you have gone through!! Xxc

        £10.00

      • Victoria Draper

        Victoria Draper

        Sep 22, 2017

        Good luck!

        £10.00

      • Matt Draper

        Matt Draper

        Sep 22, 2017

        £10.00

      Great people make things happen

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      About Crowdfunding
      About the fundraiser
      Clare Irvine

      Clare Irvine

      Kent uk

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