Weʼve raised £330 to help fund a Snoezelen Bubble Tube Sensory Corner for Evelyn. Any extra money received will be donated to SNT Vision (Bury) and PMG Stars
- Funded on Monday, 30th October 2017
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
We are trying to raise £1295 for a Snoezelen Bubble Tube Sensory Corner Kit for Evelyn's special sensory room.
Evelyn Rose was born April 2016. She is daughter to Francesca and Perry, and she is little sister to Joseph. Evelyn has Neuronal Migration Disorder, perislyvian pachygyria/polymicrogyria, a dysmorphic corpus callosum and slightly large ventricles. Her symptoms include Hypotonia, Hypermobility, Global Development Delay and Delayed/Unsafe Swallow. We are expecting at some point she will have Epilepsy in some way however we are hoping she doesn't.
Evelyn was born by emerency c-section after a failed ECV and spent 4 days in NICU. We brought home our little girl unaware of the problems she had. She spent most of her first months of life screaming, relentlessly. After many trips to the doctors and visits from the health visitor we eventually got a referral to a paediatrician. When Evelyn was 6 months old she spent almost a month and half in hospital due to intense vomiting and lack of weight gain. Thankfully we haven't had any more hospital stays since. Evelyn has improved very slowly, although she still can not sit unassisted, has very limited gross and fine motor skills, she doesn't have milestones anymore, she has inchstones.
Evelyn is a happy little girl who adores her big brother! Until night time when she likes to scream the house down. She is super ticklish, likes bells and mirrors and has recently shown an interest in In The Night Garden. Evelyn has big beautiful blue eyes and a perfect smile to match, we don't know what the future will hold for Evelyn or our family but we have each other and lots of support from family and friends.
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Fran Hilton started crowdfunding
Leave a message of support
Oct 24, 2017
Every little helps towards making a special little girl smile xx
Oct 18, 2017
Sep 18, 2017
I hope you raise everything you need, she's a beautiful girl you and Perry are great parents' to both Joe and evie lots' of love to both if you 😍 sue xx
Sep 12, 2017
I am sure Evelyn will reach her potential, with such loving & dedicated parents, wishing u lots of love, Lesley
Sep 11, 2017
Anything for our little angel just wish we could do more xxxx any help with fundraising just let us know xxx
Sep 9, 2017
So proud of my cousin and his partner, such a precious little lady ❤❤❤
Sep 9, 2017
You and Perry have a beautiful baby girl she is definitely a little star ⭐️ and I wish her all the very best and happiness in the world, with a loving family around her she will grow up 😊 happy xx
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