My two amazing cousins have both recently been diagnosed with a very rare genetic condition called dyskeratosis congenita.

I have decided to run (or occasionally quickly walk) 100 miles in May to raise funds for a Trust which they have become involved with, called The Gary Woodward Dyskeratosis Congenita Trust. This Trust helps to support, educate and provide help for people and their families who have been affected by this condition, and will help us over the years. It might be small in the grand scheme of things, but it can have a huge impact on the people it's involved with, and is extremely deserving of any donations you can spare!

Thank you so much for any pennies or pounds you can help with!

Evie (and cousins) xxx