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Candice Moles raised £2,654.3 from 117 supporters
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Closed 30/07/2022
Weʼve raised £2,654 to Evies Journey | Fundraising for Evie-Mae Belcher to support her care | Evie is seven years old with INAD - a rare terminal genetic disease
- Funded on Saturday, 30th July 2022
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Story
In November 2014 at the tender age of 2, our beautiful Evie-Mae was diagnosed with INAD - Infantile Neuroaxonal Dystrophy.
INAD is an incredibly rare genetic disease - affecting the nerve axons (which are responsible for conducting messages) in the brain and other parts of the body, causing a progressive loss of vision and of physical and mental skills. Eventually the combination of the diseased brain and physical weakness becomes too great to sustain life, and death usually occurs between the ages of five to ten years.
As a family, we have had to watch Evie lose previously acquired skills - we no longer can hear Evie talk, watch her walk or see her sitting up by herself. Evie has been tube fed for almost two years as she no longer can consume food by mouth. Despite the challenges she faces everyday, Evie remains one of the most resilient kids you will ever have the pleasure to meet, with the most beautiful smile and incredibly sweet nature.
INAD is a progressive and terminal illness - all we can do is make Evie as comfortable as possible for as long as possible.
This page has been created to help us to give Evie the best complimentary treatments and equipment as possible. Evie really benefits from massage therapy and requires extensive care and equipment - things like her massage therapy, car seats and mobility equipment aren't always funded.
All money raised will go towards Evie's care - be that massage therapy, mobility equipment or anything that gives her the best quality of life possible.
Find Evie on Facebook to follow her story: https://www.facebook.com/eviesjourneyx/
More detail on INAD can be found here: http://www.gosh.nhs.uk/medical-information/infantile-neuroaxonal-dystrophy
Updates
4
- 4 years ago
Candice Moles
4 years agoContinued.... Doesn’t sound like a big deal but it is for us 💗 This isn’t available on the NHS at almost 3K so we purchased this with Evie’s fundraising money. I wanted to say a huge thank you to everyone that’s donated. It’s made a massive difference. Forever grateful to you all😍 Evie’s Mum Rachel Xxx
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- 4 years ago
Candice Moles
4 years agoThis is Evie’s new wheelchair. We’ve had lots of issues with wheelchairs but Evie seems so much more comfortable in this. We’re not sure how much Evie can see now but we know her eyes are very sensitive to light which makes it hard for us to take her out, esp in the summer. The custom hood helps with the sun and today for the first time in ages she’s been content sitting in the garden.
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- 4 years ago
Candice Moles
4 years agoThis is Evie’s new wheelchair. We’ve had lots of issues with wheelchairs but Evie seems so much more comfortable in this. We’re not sure how much Evie can see now but we know her eyes are very sensitive to light which makes it hard for us to take her out, esp in the summer. The custom hood helps with the sun and today for the first time in ages she’s been content sitting in the garden.
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Candice Moles started crowdfunding
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Supporters
117
Louise West
Apr 1, 2021
Hope you raise the funds ❤️
£75.00
Jane Davis
Mar 14, 2021
Such a beautiful little girl x
£100.00
Anonymous
Nov 27, 2020
Have just watched Evies mum and dad on ITV. So very brave hope the small amount i can afford helps this amazing family.
£20.00
kendra norman
Jul 3, 2020
What a lovely thing you are doing Mia ❤
£20.00
Madz
Jun 11, 2020
£20.00
Anonymous
May 31, 2020
£2.00
Sarah and Hollie xx
May 18, 2020
Thank you Mia for making a cake for my daughter’s 1st birthday! You are an absolute superstar doing what you’re doing for Evie and hope you succeed in everything you do!
£35.00
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