Over our 5 year journey with Addy and her disease, we have endured many different expenses. Through Addy's journey, we have spent more than 150 days in hospital, of which meals for parents, coffee, or convenience food is completely at the family's expenses. This is even more taxing when both parents are carers for their child and rely on universal credit to live.

We have therefore been asked by a few people to create a giving page for those who would like to donate towards the ongoing expenses that come from spending so much time within medical environments.

Thank you so much for anything you may give. It is hugely appreciated.