Everleigh-Rose was diagnosed with a bicuspid aortic valve, severe stenosis of the aorta and left ventricle hypertrophy and fibroid ridge aswell as severe bilateral hearing loss, severe short sightedness which could result in retinal detachment and blindness. She underwent open heart surgery to try to correct her heart condition in september of 2020. Unfortunately although that gave us almost 3 years, her condition has again deteriorated and she will need a triple bypass open heart surgery to replace both her aortic and pulmonary valves. As you can imagine this is very traumatic for us all and in the current financial climate we are struggling. We are asking for help to fund us all being able to be together during her surgery and the financial burden that will place on us all having o be away from home and our other 2 young children. Also we are hoping for some help to take her away somewhere special this summer to make it a great one before her surgery. She is at severe risk being under general anaesthetic due to the risk of elevated blood pressure and her narrowed valves. Please help us I'm anyway you can to give our daughter a special summer, and ease some of the stress on our family. I am unable to work at present as I am her full time carer and her father works hard night and day to help. she is the sweetest most loving little girl I could dream of and wakes everyday with a smile on her face. Its every parents nightmare to have a poorly child and I just want to be able to give her the best help I am able to. Thank you so much for reading this and even if it can spread awareness of her conditions that would be amazing.