I've raised £1500 to Supply a specialist travel safe space bed

Organised by scott eburne
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Aylesbury, UK ·Disability support

Story

Zac is a 6 year old local lad who has a very rare gene deletion syndrome known as Miller Dieker. This means he has significant special needs and uncontrolled epilepsy. At home he uses a specialist bed to allow him to remain safe overnight and he can be monitored for seizures. Unfortunately this bed can not be moved and therefore he is unable to go on many holidays or visit relatives so getting a travel safe space bed will let Zac go on holiday more and visit relatives more often than he does now

About a year ago this little lad came into my life as my wife started to care for him and i found him to be an amazing child. All he goes through in life and he bounces back from it all with a smile on his face so i decided i wanted to raise money to help him and his family in any way i can. So I am going to pull a fire truck by myself! I have been training for just over 6months so far. This will be a huge challenge for myself but one I am willing to hopefully do so I can help out this amazing family.

About fundraiser

scott eburne
Organiser

Donation summary

Total
£1,747.88