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I've raised £1000 to Fight for Family: A Father's Journey Against Synovial Sarcoma

Organised by Matthew Heald
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Health and medical

Story

Back in February I was diagnosed with a rare and aggressive form of cancer called Synovial Sarcoma. The doctors at the time told me the only way to save my life was to amputate my leg. It was a daunting decision but I jumped at it to be around for my partner Claire and my baby son Ezra.

After 3 gruelling months of trying to learn to walk again, side by side with Ez (who beat me to walking by 2 days) I was told that I should have some adjuvant chemotherapy to prevent it coming back. I went for it and it seriously beat me and ground me down, resulting in almost dying from sepsis.

In my follow up meeting with the oncologist, I was going to tell him that I wanted to quit the chemo but unfortunately, that meeting didn’t go as planned. A routine CT scan showed that not only was the cancer back with a vengeance, there were a dozen inoperable and incurable tumours on my lungs.

Now the only option left is to go back in with the chemotherapy for another 15 weeks to try and give me more time. Without the chemo I have been told I have 3-6 months to live. I have told myself I have to do this. I have to try and be around for my family and do everything I can to provide for them. Little Ez is about to turn one next week.

Many of my family and friends have all asked to help out in whatever way they can so I decided the best thing to do is set up this fundraiser. My intentions for the funds raised are three-fold. Although I might not be around for Ez as he grows up, I want to be able to provide for him and Claire like I would have if I had been here.

Firstly, the money will be used to create memories with my family before I pass, but secondly, to help Ezra have the best start in life, something a dad really wants for his kid. Thirdly and finally, depending on the amount fundraised, then some of the money raised could be used to live longer using treatments that are outside the scope of the NHS.

About fundraiser

Matthew Heald
Organiser

Donation summary

Total
£742.00