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Rob and Paula Oag raised £15,430.5 from 294 supporters
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Closed 30/01/2018
Weʼve raised £15,430 to "For Lara & Maddie"
- Totton, United Kingdom
- Funded on Tuesday, 30th January 2018
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Story
Lara and Maddie are much-loved little girls. Daughters of Jonny and Lucinda, a local family living in Totton. Sadly both Lara and Maddie have life limiting conditions which make every family moment together that bit more precious.
Lara (Age 6)
“We realised Lara had problems at around 5 weeks of age and from then it became a growing picture of an extremely debilitating condition. Lara is non-verbal, visually impaired, has profound developmental delay, is fed through a tube, has epilepsy, respiratory problems and severe curvature of the spine.
Despite numerous tests, including genetic testing at Great Ormond Street, nothing was found (to explain Lara’s condition). Our geneticists therefore advised us it was a one-off genetic condition.”
Maddie (Age 1)
“We had our second daughter, Maddie, in November 2016 and (cutting short a very long and emotional story) she developed seizures at 5 weeks.
Genetic science has moved forward greatly in the last few years and with us now obviously having a family genetic issue, more tests have been carried out and (devastatingly) both girls have inherited both of our mutated genes. To date, there are only 15 known cases of this condition worldwide and, very sadly, we have learned that it is a degenerative condition.” - Jonny & Lucinda (Lara and Maddie’s parents )
'For Lara & Maddie '
‘For Lara & Maddie’ is about making some changes to Lara and Maddie’s home that will remove unnecessary complications in their already complicated family life.
By providing the family with a new kitchen layout, the project will enable manoeuvring space for the girls’ wheelchairs, a better functioning open plan space to spend family time together and will mean Jonny and Lucinda can have a close eye on their precious girls at all times.
Time is of the essence. Lara has undergone several spinal operations in her young life. However her doctors have said there will be no more, and - should her spine deteriorate further- she will only receive palliative care in the future.
A team of local contractors have committed to donate their time in February 2018 to complete building works and to install a new kitchen.
Due to Lara and Maddie having a life-limiting condition it's vital that we act now in order to raise the funds to help improve the quality of life for these beautiful girls.
We cannot do this without your help ...
Lara & Maddie's God-Parents.
Updates
9
6 years agoRob and Paula Oag
6 years agoHi all! The project was completed 3 weeks ago. Please see the video below. Thank you to all who have give time, money, resources, skills, food and prayers. You have done something amazing. God Bless you all. Team Lara and Maddie xx
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- 6 years ago
Rob and Paula Oag
6 years agoYOU DID IT!!!! :-) A huge "thank you" to all who have given to this campaign. (Lara and Maddie certainly have a way of touching peoples' hearts.) Thanks to: the fundraiser on Saturday we are now over our target!! We feel the time is right to stop asking for additional money, and get on with the task at hand. The work starts on Thursday! When its all over and totally finished we will update you. If there is any change left over from the project it will go into a trust fund for the girls to assist them in the future.
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- 6 years ago
Rob and Paula Oag
6 years agoA huge “thank you” to all those who came to the fundraiser concert today. Thanks for an amazing team effort, and a fantastic band we raised £4337 today. A big shout out to you all. We are totally overwhelmed 😃
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Rob and Paula Oag started crowdfunding
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Supporters
294
Anonymous
Jan 29, 2018
I hope this small donation from my family, helps your precious little girls and you in adapting your home.
£100.00
Reeves
Jan 28, 2018
Good Luck with the project - With Love XX
£100.00
Deborah close
Jan 28, 2018
Heres to some lovely family time in a more adaptable environment for your gorgeous baby girls!
£10.00
John and Pauline Chaffe
Jan 27, 2018
great to see the support for these two children
£50.00
Hollie Craggs
Jan 26, 2018
I was taught by Lucinda a long time ago. Sad I can’t make the concert, good luck with the fundraising, what a brilliant cause x
£15.00
Trevor Thornton
Jan 26, 2018
Look forward to seeing you back at home when all the works are done. Best wishes whilst your away.
£50.00
Andrea Lovering
Jan 26, 2018
Hi Paula and Rob. Thank you for everything you are doing to support Lucinda, Jonny, Lara and Maddie. Here's to them having some great family time in their home. Xx
£30.00
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