70%
£14,100raised of £20,000 target by 257 supporters

Weʼre raising £20,000 to "For Lara & Maddie"

Location
Totton, United Kingdom

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Story

Lara and Maddie are much-loved little girls. Daughters of Jonny and Lucinda, a local family living in Totton. Sadly both Lara and Maddie have life limiting conditions which make every family moment together that bit more precious.

Lara (Age 6)

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“We realised Lara had problems at around 5 weeks of age and from then it became a growing picture of an extremely debilitating condition. Lara is non-verbal, visually impaired, has profound developmental delay, is fed through a tube, has epilepsy, respiratory problems and severe curvature of the spine.

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Despite numerous tests, including genetic testing at Great Ormond Street, nothing was found (to explain Lara’s condition). Our geneticists therefore advised us it was a one-off genetic condition.”

Maddie (Age 1)

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“We had our second daughter, Maddie, in November 2016 and (cutting short a very long and emotional story) she developed seizures at 5 weeks.

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Genetic science has moved forward greatly in the last few years and with us now obviously having a family genetic issue, more tests have been carried out and (devastatingly) both girls have inherited both of our mutated genes. To date, there are only 15 known cases of this condition worldwide and, very sadly, we have learned that it is a degenerative condition.” - Jonny & Lucinda (Lara and Maddie’s parents )

'For Lara & Maddie '

‘For Lara & Maddie’ is about making some changes to Lara and Maddie’s home that will remove unnecessary complications in their already complicated family life.

By providing the family with a new kitchen layout, the project will enable manoeuvring space for the girls’ wheelchairs, a better functioning open plan space to spend family time together and will mean Jonny and Lucinda can have a close eye on their precious girls at all times.

Time is of the essence. Lara has undergone several spinal operations in her young life. However her doctors have said there will be no more, and - should her spine deteriorate further- she will only receive palliative care in the future.

A team of local contractors have committed to donate their time in February 2018 to complete building works and to install a new kitchen.

Due to Lara and Maddie having a life-limiting condition it's vital that we act now in order to raise the funds to help improve the quality of life for these beautiful girls.

We cannot do this without your help ...

Lara & Maddie's God-Parents.

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Updates

5

  • Rob and Paula Oag6 days ago
    Rob and Paula Oag

    Rob and Paula Oag

    6 days ago

    We're truly humbled by the generosity you've all shown to this campaign - the messages of support that have poured in for Jonny, Lucinda, Lara and Maddie have made such a difference to the family in recent weeks as little Maddie has been quite ill. Your support has transformed the dream of helping this family into a near reality and, thanks to a generous offline donation, we're now able to alter our overall target. Work will begin at the family's home on 2nd February, we're so close now, thank you all so much!

    Share this update to help us raise more

  • Rob and Paula Oag24 days ago
    Rob and Paula Oag

    Rob and Paula Oag

    24 days ago

    Save the date 😃

    Update from the Page owner

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  • Rob and Paula Oag1 month ago
    Rob and Paula Oag

    Rob and Paula Oag

    1 month ago

    Maddie is rocking out her punk style today and saying thank you to all those supporting this campaign. Keep sharing.

    Update from the Page owner

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1 month ago

Rob and Paula Oag started crowdfunding

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Supporters

257

  • Anonymous

    Anonymous

    Jan 16, 2018

    My prayers and support are with you.

    £100.00

  • Anonymous

    Anonymous

    Jan 15, 2018

    God bless you and your family, your girls are beautiful little miracles and I pray that God provides you with the money you need to give them the best!!

    £578.00

  • Anonymous

    Anonymous

    Jan 15, 2018

  • Penny Mead

    Penny Mead

    Jan 15, 2018

    Hoping this will help a little towards all you need for Lara and Maddie. Good luck with the concert on 27th Janxx

    £10.00

  • Anonymous

    Anonymous

    Jan 15, 2018

  • Stacey-Louise Mackney

    Stacey-Louise Mackney

    Jan 14, 2018

    I hope this transformation makes a huge difference to making things a little easier. Love Stacey and family xx

    £10.00

  • Rebecca cook

    Rebecca cook

    Jan 14, 2018

    Lots of love and prayers. X

    £10.00

About the fundraiser
Rob and Paula Oag

Rob and Paula Oag

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Totton, United Kingdom

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