29%
£436raised of £1,500 target by 16 supporters

Weʼre raising £1,500 to help fund potentially life saving cough assist machine for young Leon affected by spinal muscle atrophy 2 (SMA 2).

Location
Gdynia, Poland
Time left
4 days to go

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Story

Hey! The little fellow above with a huge smile is Leon Hoepfner.
Leon lives in a small place called Skarszewo in Poland. He's just like any other kid; he loves to play, chase a cat and explore the big world around him.
He's just like any other 18 months old kido, except for the fact that he is affected by the rare and nasty condition called spinal muscle atrophy 2 (SMA 2).
It means that his muscles are not strong enough to support him stand up and run. He needs assistance for that.
In fact he needs a lot of attention and assistance with many other things too.
Luckily he has got wonderful parents and relatives, taking really good care. During those hours I spent with them, 3 weeks ago, he was constantly looked after by someone.
But time is not the only factor. Unfortunately finances have their importance too.
Currently Leon's parents Żaneta and Tomasz are striving to obtain funds for the costly equipment known as cough assist machine or "coughalator".
It's required for a periodic lung rehabilitation and also as a potential life-saver in case of ordinary sickness.
My partner Ann Johansson and I decided to start a crowdfunding activity in order to help them.
Leon's FB (in Polish):
https://web.facebook.com/leonekhoepfner/?ref=br_rs
About SMA:
https://rarediseases.info.nih.gov/…/spinal-muscular-atrophy…
(picture by Leon's mom Żanetta Hoepfner)

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Updates

3

  • Ann Johansson and Tomasz Gehrke

    Ann Johansson and Tomasz Gehrke

    2 months ago

    Ann Johansson and Tomasz Gehrke

    December 23, 2016. Thank you so much for helping us to make a difference! Yesterday I got the message from Leon's mom - Zanetta ; Little Leon is doing fine and was unusually patient during his everyday's face massage :-) ps. We are in Pu'er, Yunnan, China - 280km from the border with Laos. A few days of cycling. Not sure we can access the internet tomorrow, therefore: Merry Christmas to all !!!

    Update from the Page owner

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    • Ann Johansson

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  • Ann Johansson and Tomasz Gehrke

    Ann Johansson and Tomasz Gehrke

    2 months ago

    Ann Johansson and Tomasz Gehrke

    December 13, 2016. (Saint Lucy's celebration day in Sweden). Tomasz and Ann are in Dali, China, after having cycled together almost 400km through the mountains of Chinese province of Yunnan. Today we managed to get in touch with Zanetta, Leons mom. We got some really good news from her: With the latest fundraising operation organised for Leon's cause in Swiecie, Poland, the family got over a half of the money required for the purchase of cough assisting machine, great! Therefore we decided to reduce our goal to 1500 gbp. Thank you all !!!

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  • Ann Johansson and Tomasz Gehrke

    Ann Johansson and Tomasz Gehrke

    2 months ago

    Ann Johansson and Tomasz Gehrke

    December 2, 2016 - three days after arriving in China Tomasz managed to find Ann - high in the mountains. On the border between Sichuan and Yunnan. Two days later we arrived in Shangri-La, for a few days of rest. Today, December 13, 2016 we are in Dali, Yunnan getting ready for the next part: to Laos. From the bottom of our hearts, thank you all the donors who have contributed so far! You are awesome <3

    Update from the Page owner

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3 months ago

Ann Johansson and Tomasz Gehrke started crowdfunding

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Supporters

16

  • Z Z

    Z Z

    Feb 18, 2017

    pozdrowienia z Tczewa i Gdanska

    £50.00

  • Bobby Fries

    Bobby Fries

    Jan 6, 2017

    Tomas & Ann, Your keen determination in cycling all over as you have is very inspiring for me. Your caring about this little fellow is very heartening as well. I pray that he & U 2 are blessed greatly

    £30.00

  • Birgit & Rolf Burström

    Birgit & Rolf Burström

    Dec 23, 2016

    Till Leon från Birgit & Rolf, God Jul!

    £35.00

Ann Johansson and Tomasz Gehrke

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About the fundraiser
Ann Johansson and Tomasz Gehrke

Ann Johansson and Tomasz Gehrke

Gdynia, Poland

Ann Johansson, 31 from Sweden and Tomasz Gehrke, 44 from Poland. Ann is currently cycling from her home in Ljusne, Sweden to New Zealand. Tomasz is on his way to join Ann in China. You can find more at mairawa.com and our FB profiles.

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