7%
£215raised of £3,000 target by 8 supporters

Weʼre raising £3,000 to help fund potentially life saving cough assist machine for young Leon affected by spinal muscle atrophy 2 (SMA 2).

Location
Gdynia, Poland
Time left
47 days to go

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Story

Hey! The little fellow above with a huge smile is Leon Hoepfner.
Leon lives in a small place called Skarszewo in Poland. He's just like any other kid; he loves to play, chase a cat and explore the big world around him.
He's just like any other 18 months old kido, except for the fact that he is affected by the rare and nasty condition called spinal muscle atrophy 2 (SMA 2).
It means that his muscles are not strong enough to support him stand up and run. He needs assistance for that.
In fact he needs a lot of attention and assistance with many other things too.
Luckily he has got wonderful parents and relatives, taking really good care. During those hours I spent with them, 3 weeks ago, he was constantly looked after by someone.
But time is not the only factor. Unfortunately finances have their importance too.
Currently Leon's parents Żaneta and Tomasz are striving to obtain funds for the costly equipment known as cough assist machine or "coughalator".
It's required for a periodic lung rehabilitation and also as a potential life-saver in case of ordinary sickness.
My partner Ann Johansson and I decided to start a crowdfunding activity in order to help them.
Leon's FB (in Polish):
https://web.facebook.com/leonekhoepfner/?ref=br_rs
About SMA:
https://rarediseases.info.nih.gov/…/spinal-muscular-atrophy…
(picture by Leon's mom Żanetta Hoepfner)

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Updates

0

    13 days ago

    Ann Johansson and Tomasz Gehrke started crowdfunding

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    Supporters

    8

    • Mikael Wahss

      Mikael Wahss

      Dec 8, 2016

      £20.00

    • Stefan Haric

      Stefan Haric

      Dec 6, 2016

      En liten peng till Leon. Keep smiling!

      £20.00

    • Ulrika Pizzeghello

      Ulrika Pizzeghello

      Dec 6, 2016

      £10.00

    Ann Johansson and Tomasz Gehrke

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    About the fundraiser
    Ann Johansson and Tomasz Gehrke

    Ann Johansson and Tomasz Gehrke

    Gdynia, Poland

    Ann Johansson, 31 from Sweden and Tomasz Gehrke, 44 from Poland. Ann is currently cycling from her home in Ljusne, Sweden to New Zealand. Tomasz is on his way to join Ann in China. You can find more at mairawa.com and our FB profiles.

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